Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
TOUCHED BY LYME: Saving money on Lyme-related lab tests
Paying out-of-pocket for lab testing can take a hefty toll on your family’s pocketbook. Here’s one way to save.
TOUCHED BY LYME: "300,000" number catches media's eye
When the CDC bumped its estimate of annual Lyme cases from 30,000 to ten times that, it made the evening news.
TOUCHED BY LYME: New CDC Lyme figures still ignore important issues
The CDC upped its official count of Lyme disease cases in the US to 300,000, ten times the previous number.
TOUCHED BY LYME: Rash of Lyme stories in national media
The past few months have seen a sharp rise in Lyme disease coverage in the national news media. Here are clickable links, in case you…
TOUCHED BY LYME: In latest "Yellow Book," CDC still minimizes Lyme disease risk
Updated edition of “ultimate guide for healthy travel” obscures the fact that Lyme is a world-wide concern.
TOUCHED BY LYME: The difference between "normal tired" and "too tired to breathe"
Guest blogger Jennifer Crystal explores what “fatigue” can mean to a person with chronic Lyme disease.
TOUCHED BY LYME: Unfortunate news for young MA tick researcher
Her case underscores the need for extreme vigilance concerning ticks.
TOUCHED BY LYME: Bracelets for Lyme disease
The US Mail brings a gift from the heart to help Lyme patients.
TOUCHED BY LYME: Making Lyme-Aid
Guest blogger Phyllis Mervine pays tribute to all the people “Touched by Lyme” who have used their knowledge and experience to lend a hand to…
TOUCHED BY LYME: Media Coverage Response
Guest blogger Jennifer Crystal responds to recent media coverage in by reporters from the Boston Globe and the New Yorker.
TOUCHED BY LYME: Things gained, things lost, things learned from Lyme disease
Guest blogger Jon Katz, an American author and photographer, is known for book about dogs, animals and rural life, including “The Dogs of Bedlam Farm”…
TOUCHED BY LYME: KC's Kathy White, telling it like it is to the CDC
This Lyme advocate had to miss a planned meeting with CDC officials because she had a stroke. She delivered her presentation to them from her…