
Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
Known tick bite, no symptoms, what to do?
A concerned grandfather and I exchange emails.
TOUCHED BY LYME: Understanding Lyme disease through art
The organizers of this juried show hope to start a dialogue about Lyme disease through art.
TOUCHED BY LYME: Lyme disease on the Appalachian Trail
Guest blogger Karl Ford collected infected ticks while hiking the Appalachian Trail, but kept himself tick-free. “I wore permethrin-treated bug-net pants, a treated long-sleeved shirt…
TOUCHED BY LYME: Let Justina go home with her parents—now!
The next step in the chilling story of Justina Pelletier is a court hearing in Boston on March 17.
TOUCHED BY LYME: How the “pain scale” inflicts even more pain on children
Children with Lyme disease experience many different kinds of pain, which don’t always fit neatly into categories on a medical chart.
TOUCHED BY LYME: Tax strategies for parents of kids with special needs
Guest blogger Regina Levy, CPA, discusses tax issues that may apply to parents of children with Lyme disease.
Yolanda Foster tops 5-year Lyme hit parade
The Real Housewife’s struggle with Lyme disease is by far the most-accessed news story on our blogs.
TOUCHED BY LYME: “Why I stopped hiding my illness”
Guest blogger Sarah Israel tells why, after 10 years of silence, she started speaking up about Lyme disease.
TOUCHED BY LYME: Financial destruction from Lyme disease
The illness damages more than your body. It can also demolish your bank account.
TOUCHED BY LYME: When punk rock collides with Lyme disease
A new documentary explores the life and times of former “riot grrrl” Kathleen Hanna.
TOUCHED BY LYME: How to set up a Lyme support group
Online groups are valuable tools for people with Lyme. But there’s something about face-to-face connections that just can’t be beat.
TOUCHED BY LYME: Taking to YouTube–and knitting needles–in search of answers
A teenager with Lyme seeks answers on the internet, while knitting scarves to pay for medical treatment.












