Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
Mother's "Lyme rage" over child's illness propels her to seek answers
(Book review) Lyme Rage: A Mother’s Struggle to Save Her Daughter from Lyme Disease, by Mindy Haber.
TOUCHED BY LYME: CDC fires another salvo against "chronic Lyme"
Latest scare tactic warns that chronic Lyme diagnosis can lead to “permanent damage or death.”
TOUCHED BY LYME: Rising musical star gives Dec. 4 “Stageit” concert for Lyme
Kêta’s own experience with Lyme disease inspires her music and her desire to help others in the same boat.
Helping chronically ill kids dig deep for healing
(Book review) Digging Deep: A Journal for Young People Facing Health Challenges.
Another Lyme voice falls silent
Guest blogger Sandi Bohle offers this appreciation for the legacy of Leslie Feinberg, who died this week from complications of Lyme disease.
TOUCHED BY LYME: Finding what it takes to keep you functional
Asks guest blogger Jennifer Crystal: Would life be easier if I didn’t take so much medication?
Send Willy Burgdorfer a message of gratitude
Willy Burgdorfer, the discoverer and namesake of the spirochete that causes Lyme disease (Borrelia burgdorferi), has entered hospice care.
TOUCHED BY LYME: A new way to "crowdfund" your medical bills
Needy Meds is a resource for people who need help with the cost of medical care. The organization is a clearing house for Patient Assistance…
When family members don’t believe you have Lyme
A father regrets that he failed to believe his daughter really had Lyme disease. His message to others who have family members with Lyme: “Lyme…
“I am not alone in this hellish journey”
Guest blogger Sofia Webster paints a portrait of one day in a Lyme disease support group.
Washington Post writer's question about Lyme disease
The mother of a daughter with Lyme disease wonders what do about lingering symptoms. In my opinion, she’s turning to the wrong voices for answers…
Telling the stories of people with Lyme disease
“The Lyme Altar: A People’s History of Symptoms, Sacrifice and Hope,” a new documentary, focuses on Lyme patients and the doctors who treat them.