Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
TOUCHED BY LYME: Yes, the IDSA noticed us in San Diego
A valiant group of Lyme activists braved a record-breaking heat wave in San Diego Oct. 9-10 to protest outside the Infectious Diseases Society of America’s…
TOUCHED BY LYME: “Most serious undiagnosed health threat in existence”
Many people think that if they had tons of money in the bank, their problems would be solved. However, UK billionaire John Caudwell has found…
TOUCHED BY LYME: Lyme cyclist to reach Pacific October 3
In May 2011, Logan McCulloch of Kentucky was hiking with his son in Mammoth Cave National Park, when he was bitten by more than 20…
TOUCHED BY LYME: Lyme Quilt coming to San Diego protest
A couple of years ago, a Lyme patient named Tami Griffith felt inspired to create a special quilt in honor of the Lyme community….
When Your Child Has Lyme disease: A Parent’s Survival Guide
For the past several years, I’ve been collaborating with psychotherapist Sandy Berenbaum on a book entitled When Your Child Has Lyme Disease: A Parent’s Survival…
Suffering the Silence: Chronic Lyme Disease in an Age of Denial
When Allie Cashel, now 23, was a young child, her father was diagnosed with Lyme disease. Later, when she was seven, she and her three…
TOUCHED BY LYME: Six apps to simplify life with Lyme
By guest blogger Rachel As someone with 10 years of experience as a chronically ill person, I’ve come to learn that phone apps can be…
TOUCHED BY LYME: My letter published in San Francisco Chronicle
The San Francisco Chronicle gave great coverage to Stanford’s recent study showing a high prevalence of infected ticks in the Bay Area. However, I felt…
TOUCHED BY LYME: Letter to her pre-illness self
by guest blogger Paula Jackson Jones I wrote this letter last year, when I went into remission from my six-year battle with late stage neurological…
TOUCHED BY LYME: Sometimes “tick panic” is a good thing
The headline caught my eye immediately: Five reasons to not totally panic about ticks and Lyme disease. The publication: Science News—Magazine for the Society of…
TOUCHED BY LYME: CDC ups cases to 329,000; some docs push back
The Centers for Disease Control and Prevention (CDC) now says there are about 329,000 cases of Lyme disease in the US every year. That’s up…
TOUCHED BY LYME: Protesting IDSA in San Diego, Oct. 9-10
In early October, the Infectious Diseases Society of America (IDSA)—you know, the Lyme denialists, the ones who insist chronic Lyme doesn’t exist, who make it…