Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
The basics about protecting yourself from ticks
Ticks can be found in different kinds of terrain, at different times of the year, in different kinds of weather. They come in different sizes….
Helpful Lyme disease information links
Websites, Books, Videos and more www.lymedisease.org –the website of LymeDisease.org gives info about ticks, Lyme disease, co-infections, prevention, risk maps, downloadable brochures, blogs, news and events….
Book review: “Cannabis for Lyme disease and related conditions”
In my role as a Lyme disease advocate and support group leader, I regularly hear from people who are sick and suffering and kicked to…
A life on pause: when Lyme steals everything
From guest blogger Jenny Buttaccio: It’s nighttime. Lying in bed wide-eyed and frustrated as the clock ticks, you pray for just a few hours of…
“Dear Abby” writes about Lyme disease
After running a letter about Lyme disease, advice columnist “Dear Abby” discloses her own husband’s experience with Lyme disease.
TOUCHED BY LYME: An easier way to comment on IDSA's Lyme review
The IDSA has devised a complex method for accepting public comments. You are supposed to specifically discuss their Project Plan, which includes more than 80…
TOUCHED BY LYME: One patient’s comments to IDSA
The IDSA is accepting public comments about its Lyme guidelines review process through April 9. Rules for commenting require you to cite page and line…
TOUCHED BY LYME: What a real "patient representative" actually looks like
Guest blog from the former president of the Lyme Disease Association of Australia.
TOUCHED BY LYME: The World According to Harrison
Harrison the dog lives in British Columbia and has his own blog on Facebook. He teaches the world about Lyme disease. Recently, he participated in…
TOUCHED BY LYME: When Lyme disease affects the heart
(Book review) Gone in a Heartbeat: A Physician’s Search for True Healing, by Neil Spector, MD.
New support group for parents of kids with Lyme
LymeParents Yahoo group offers a forum for parents (and other family members) of children with Lyme disease to share information and mutual support.
Connecting with other "teen Lyme-a-beans"
Guest blogger Cassidy Colbert talks about why teens with Lyme disease need the support of others in the same boat.