Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
TOUCHED BY LYME: “IDSA guidelines, will you please go now!”
This is a re-play of a blog I wrote four years ago. I thought of it this week when I heard that the National Guidelines…
TOUCHED BY LYME: “Go for the openings!”
It’s a question that comes up time and again in the Lyme community. Since most people with Lyme got nailed by ticks while they were…
TOUCHED BY LYME: The adventures of getting a PICC line
Guest blogger Hannah Barry offers a play-by-play account of having a PICC line inserted for Lyme treatment. So I have a PICC line now. It…
TOUCHED BY LYME: Huffington Post reviews my Lyme disease book
I’ve written other books before. But none that I am prouder of than the one I co-wrote with Sandy Berenbaum called When Your Child Has…
TOUCHED BY LYME: Jesse Colin Young sings of “Lymelife”
In the 1960s, singer/songwriter Jesse Colin Young and his former band the Youngbloods shot to stardom with the hit song “Get Together.” After the band…
TOUCHED BY LYME: Is it Lyme or “school avoidance”?
I recently received the following message from a school nurse: We have a 12-year-old student who was diagnosed with mono in early October. He has…
TOUCHED BY LYME: NEA’s “teachable moment” ends in apology–sort of
This morning, I (and a whole lot of others on social media) took offense at recent comments by the president of the National Education Association….
TOUCHED BY LYME: “Chronically tarded and medically annoying”? Really?
The National Education Association is the largest labor union in the United States, representing public school teachers and other educational personnel. NEA President Lily Eskelsen…
Thanksgiving in the Lyme world, 2015
Along with new and continuing challenges for the Lyme community, there is also much to be grateful for. Here’s our Lyme gratitude list for…
Lyme disease in Hawaii: one patient’s story
From the Ticked Off Music Fest: While Hawaii’s recent dengue fever outbreak has caused beaches to close and stores to sell out of mosquito repellent,…
TOUCHED BY LYME: Compelling Lyme memoir now an audio book
In May 2014, I reviewed lyme light: a memoir, by Natalie London. It’s now available as an audio book, narrated by Natasha Lyonne from the Netflix series…
TOUCHED BY LYME: Being your own superhero
Last month, at the IDSA Lyme protest in San Diego, I met Michelle Trostler, who was dressed like Wonder Woman. When I asked why, she…