Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
TOUCHED BY LYME: Hikers should think twice before sitting on rocks
I heard a presentation last week by biologist Greg Hacker. He collects and tests ticks in the vicinity of Folsom Lake State Recreation Area, in…
TOUCHED BY LYME: “Little Things” packs powerful punch
“The Little Things” is a docudrama based on the life of Joseph Elone, a New York teenager who died from unrecognized Lyme disease. It will…
TOUCHED BY LYME: Arkansas takes baby steps to recognize Lyme disease
The Arkansas Health Department made headlines last week for actually acknowledging two cases of Lyme disease in their state. It’s the first time they’ve admitted…
TOUCHED BY LYME: Lyme disability ruling is a positive step
Barbara Arnold, an attorney in Oakland, California, specializes in helping people get Social Security Disability Insurance (SSDI) benefits after Lyme and related diseases force them…
TOUCHED BY LYME: It’s time for me to stop joking about my health
Guest blog by Shira Gusfield If you ever ask me why I’m at the doctor’s office so often, I say I don’t feel well most…
TOUCHED BY LYME: Threading your way through Morgellons disease
What can cause weird things to pop out of your skin—perhaps looking like colorful threads of blue, red, white or black? They may even look…
TOUCHED BY LYME: When you realize that yes, recovery is possible
Guest blogger Sofia Webster has undergone treatment for Lyme disease, co-infections, and mold. She originally posted this update for her Facebook friends. With permission, I…
Thanksgiving in the Lyme world, 2016
. Along with new and continuing challenges for the Lyme community, there is also much to be grateful for this Thanksgiving season. Here’s our gratitude…
TOUCHED BY LYME: Keeping records for those who have died
LymeDisease.org launched the MyLymeData project a year ago, in order to capture the experiences of people with Lyme disease. When participants sign up, they are asked…
TOUCHED BY LYME: Songwriter no longer “Paralyzed” by Lyme
When Marina Morgan was 13 years old, she developed an auto immune disease called acute disseminated encephalomyelitis (ADEM). According to the National Institutes of Health, ADEM…
TOUCHED BY LYME: When are Lyme-like symptoms actually caused by B. miyamotoi?
Borrelia miyamotoi is a tick-borne pathogen that has only recently been known to cause disease in humans. It’s related to Borrelia burgdorferi—the Lyme disease spirochete—and…
TOUCHED BY LYME: “Dear Borrelia, let me win some battles”
The following is republished by permission, from the Facebook page of Jannine Harris of the UK. (For those who are new to all this, “Borrelia”…