Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
TOUCHED BY LYME: Connecting the dots of Yolanda’s Lyme experience
I first learned about the Lyme disease experiences of Yolanda Hadid (then known as Yolanda Foster) via Twitter. At that point, Yolanda was a cast…
TOUCHED BY LYME: Misinterpreting the word “occur” on the CDC website
I’ve long been exasperated by a particular sentence in the Lyme disease section of the CDC’s website: “This disease does not occur nationwide.” In a…
TOUCHED BY LYME: Ora, the girl with the mystery illness
Nowhere Men is a Facebook Page run by three guys who say “everybody has a story to tell.” They have traveled from the US to…
TOUCHED BY LYME: When Lyme disease isn’t caught early
The question was posed on one of LymeDisease.org’s online discussion groups. A mother had found a bull’s-eye rash on her 5-year-old son. She took him…
TOUCHED BY LYME: Facebook posts affect Lyme disease lawsuit
It is very common for people who actually have Lyme disease to be told by their doctors they don’t have it. They may suffer for…
TOUCHED BY LYME: Lyme moms meet with Canadian Health Minister
Two Canadian mothers, nurse Sue Faber and attorney Jennifer Kravis, this week carried letters from Lyme patients to Canadian Federal Health Minister Jane Philpott and…
TOUCHED BY LYME: Winning video links Lyme to climate change
The Climate Cost Project is an organization that encourages Americans to start talking about how environmental change affects specific communities and individuals. The group recently…
TOUCHED BY LYME: Mobile game helps teens discover resilience
“Shadow’s Edge” is the first mobile game designed to help teens facing serious health challenges discover their resilience. It’s based on a journaling book called…
TOUCHED BY LYME: California Lyme cases “don’t get no respect”
There’s a troubling statement about Lyme disease on the CDC website which is widely cited in the media: “This disease does not occur nationwide.” (Editor’s…
TOUCHED BY LYME: Lyme moms to meet with Canadian Health Minister
A few months ago, I wrote about two Canadian mothers with Lyme disease—nurse Sue Faber and attorney Jennifer Kravis—and their Lyme Letters Canada campaign. The…
TOUCHED BY LYME: Filling library shelves with Lyme disease books
Michele Miller of Massachusetts used to be a librarian. So back in 2011, when her mother, Jeanne Cloutier, was diagnosed with Lyme disease, one of…
TOUCHED BY LYME: British Lord discusses Lyme in “Queen’s Speech” debate
This week has been a momentous time in the UK. Amidst a lot of pomp and pageantry, the annual Queen’s Speech marks the State Opening…