Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
TOUCHED BY LYME: CDC ignores ethics, attacks “chronic Lyme”
This week, CDC employees published an article about five patients who had “adverse effects” after undergoing “unproven” treatments for Lyme disease. What they failed to…
TOUCHED BY LYME: The world’s oldest Lyme disease patient
They call him Ötzi the Iceman. He lived and died 5300 years ago, in the Eastern Alps near the modern-day border of Austria and Italy….
TOUCHED BY LYME: A close look at six Lyme-related infections
When mainstream medicine talks about Lyme disease (if at all), it’s usually couched in simple terms: A tick infected with one organism bites a person,…
TOUCHED BY LYME: Don’t miss this terrific Lyme reporting
David Michael Conner often blogs about Lyme disease for the Huffington Post. He reports on large policy issues as well as his lived personal experience…
TOUCHED BY LYME: 8th graders win “Be Tick Free” video contest
A 60-second computer-animated video about protecting yourself from tick bites has won first place in the 2017 Dutchess County, New York, “Be Tick Free”…
TOUCHED BY LYME: Remembering Wisconsin’s beloved Lyme doctor
I was saddened to learn this week about the death of Dr. John Hoffmann, a well-known and much beloved Lyme doctor from Wisconsin. I only…
TOUCHED BY LYME: A teenager seeks answers to a lifetime of pain
The following guest blog is written by Kristina Morrison: Dear American Medical Association, CDC, and all the doctors who have ever treated me, You failed…
TOUCHED BY LYME: Canadian Lyme moms carry petitions to Ottawa
Two Canadian mothers with Lyme disease–nurse Sue Faber and attorney Jennifer Kravis–started a website called LymeHope. They also launched a campaign called Lyme Letters Canada,…
TOUCHED BY LYME: A mobile game for chronically ill teens
Several years ago, two women who care deeply about supporting the emotional needs of children facing severe illness or disability collaborated on a book. Digging…
TOUCHED BY LYME: Hikers should think twice before sitting on rocks
I heard a presentation last week by biologist Greg Hacker. He collects and tests ticks in the vicinity of Folsom Lake State Recreation Area, in…
TOUCHED BY LYME: “Little Things” packs powerful punch
“The Little Things” is a docudrama based on the life of Joseph Elone, a New York teenager who died from unrecognized Lyme disease. It will…
TOUCHED BY LYME: Arkansas takes baby steps to recognize Lyme disease
The Arkansas Health Department made headlines last week for actually acknowledging two cases of Lyme disease in their state. It’s the first time they’ve admitted…