Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
TOUCHED BY LYME: “Powerful” patients axed Lyme vaccine? Baloney!
I have mixed feelings about the following article in the Wall Street Journal this week: “The Effort for Lyme Disease Vaccine Draws Early Fire.” To…
TOUCHED BY LYME: “Non-relevant” tick bite puts child in hospital
A mother’s posting on Facebook has gone viral. Here’s her story. Gina Elizabeth, of southwest Pennsylvania, took her four-year-old daughter Morgan to her local hospital…
TOUCHED BY LYME: Using high level math to fight Lyme disease
The Adversity 2 Advocacy Alliance is a nonprofit organization dedicated to promoting and fostering the power of turning personal challenges into service to others with…
TOUCHED BY LYME: Say what? California fifth in nation for Lyme insurance claims?
The CDC’s official count of approximately 30,000 Lyme disease cases per year in the United States has been a constant source of exasperation to the…
TOUCHED BY LYME: “Dropping rhymes” to target Lyme disease
The health department of Fairfax County, Virginia, has come up with an eye-popping (and ear-popping!) way to teach people about Lyme disease–a rap music video….
TOUCHED BY LYME: No Lyme in the South? Guess again.
Kevin Wolfe of Alabama is the father of a son with Lyme disease. The boy suffered from intense pain, light sensitivity and an array of…
TOUCHED BY LYME: 4th year of “Take a bite out of Lyme” campaign
Once again, the international grassroots social media campaign known as “Lyme Disease Challenge” has been in full gear this month, raising Lyme disease awareness in…
TOUCHED BY LYME: Letterman gives a tick to Seth Meyers on TV
In an unusual observance of Lyme Disease Awareness Month, comedian David Letterman visited “Late Night with Seth Meyers” with something unexpected in his pocket. It…
TOUCHED BY LYME: “Rehashing” LYMErix vaccine? Yes, let’s do that
Many in the Lyme community have followed the proceedings of the federal Tick-Borne Diseases Working Group closely. As I watched the webcast of the May…
TOUCHED BY LYME: New CDC stance on Lyme disease?
The Centers for Disease Control and Prevention made big news this week by announcing that illnesses from mosquito, tick and flea bites have more than…
TOUCHED BY LYME: Guidelines clearinghouse to shut down in July
The Agency for Healthcare Research and Quality (AHRQ) is a small, little-known part of the US Department of Health and Human Services (HHS). One of…
TOUCHED BY LYME: Why you should read (and review) the new Lyme book
Investigative journalist Mary Beth Pfeiffer started crisscrossing the US this week, promoting her new book “Lyme: The First Epidemic of Climate Change.” It’s an important…