Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
TOUCHED BY LYME: Caring for a child with Lyme disease
I was recently privileged to be interviewed by Cindy Kennedy, FNP, about the book I co-authored with Sandra Berenbaum, “When Your Child Has Lyme Disease:…
TOUCHED BY LYME: Nelson Family Project spreads awareness of Lyme disease in Maine
Elizabeth Nelson, 22, has been sick since childhood, with a laundry list of symptoms that would come and go over the years. However, things really…
TOUCHED BY LYME: The NY Times and the question of a Lyme vaccine
The New York Times ran an article today under the headline: Lyme disease is spreading fast. Why isn’t there a vaccine? Most troubling to me…
TOUCHED BY LYME: Why we care so strongly about a potential vaccine
I was recently contacted by a reporter for a national news organization. She was blunt: why is your organization so opposed to a vaccine for…
TOUCHED BY LYME: “Powerful” patients axed Lyme vaccine? Baloney!
I have mixed feelings about the following article in the Wall Street Journal this week: “The Effort for Lyme Disease Vaccine Draws Early Fire.” To…
TOUCHED BY LYME: “Non-relevant” tick bite puts child in hospital
A mother’s posting on Facebook has gone viral. Here’s her story. Gina Elizabeth, of southwest Pennsylvania, took her four-year-old daughter Morgan to her local hospital…
TOUCHED BY LYME: Using high level math to fight Lyme disease
The Adversity 2 Advocacy Alliance is a nonprofit organization dedicated to promoting and fostering the power of turning personal challenges into service to others with…
TOUCHED BY LYME: Say what? California fifth in nation for Lyme insurance claims?
The CDC’s official count of approximately 30,000 Lyme disease cases per year in the United States has been a constant source of exasperation to the…
TOUCHED BY LYME: “Dropping rhymes” to target Lyme disease
The health department of Fairfax County, Virginia, has come up with an eye-popping (and ear-popping!) way to teach people about Lyme disease–a rap music video….
TOUCHED BY LYME: No Lyme in the South? Guess again.
Kevin Wolfe of Alabama is the father of a son with Lyme disease. The boy suffered from intense pain, light sensitivity and an array of…
TOUCHED BY LYME: 4th year of “Take a bite out of Lyme” campaign
Once again, the international grassroots social media campaign known as “Lyme Disease Challenge” has been in full gear this month, raising Lyme disease awareness in…
TOUCHED BY LYME: Letterman gives a tick to Seth Meyers on TV
In an unusual observance of Lyme Disease Awareness Month, comedian David Letterman visited “Late Night with Seth Meyers” with something unexpected in his pocket. It…