Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
TOUCHED BY LYME: “Rehashing” LYMErix vaccine? Yes, let’s do that
Many in the Lyme community have followed the proceedings of the federal Tick-Borne Diseases Working Group closely. As I watched the webcast of the May…
TOUCHED BY LYME: New CDC stance on Lyme disease?
The Centers for Disease Control and Prevention made big news this week by announcing that illnesses from mosquito, tick and flea bites have more than…
TOUCHED BY LYME: Why you should read (and review) the new Lyme book
Investigative journalist Mary Beth Pfeiffer started crisscrossing the US this week, promoting her new book “Lyme: The First Epidemic of Climate Change.” It’s an important…
TOUCHED BY LYME: Pfeiffer electrifies at MyLymeData2018…and online
Investigative journalist Mary Beth Pfeiffer speaks in quiet, steady, well-modulated tones. But her message packs a powerful punch. It is at once riveting, deeply moving,…
TOUCHED BY LYME: Book calls epidemic “global and dangerous”
The story of Lyme disease in the modern world is maddeningly complex. To even begin to properly tell it, you need to give context about…
TOUCHED BY LYME: Women and Lyme disease. What’s going on?
Sini Anderson is a filmmaker and artist who directed The Punk Singer, a 2013 documentary about musician Kathleen Hanna and her experience with late-stage Lyme…
TOUCHED BY LYME: Book’s “strong case” against Lyme status quo
Kirkus Reviews is an influential publication geared primarily to libraries and bookstores. It recommends books for stores and libraries to purchase before they are available…
TOUCHED BY LYME: Books for your own shelf, or for gifting to others
Looking for suggestions of useful Lyme-related books? Here are some I personally recommend. All are available from online sources. Many are in e-book format as…
TOUCHED BY LYME: Decorated female Air Force pilot now “unfit for duty”
The first patient advocate to address Monday’s inaugural meeting of the Tick-Borne Diseases Working Group in Washington really knocked our socks off. Air Force Colonel…
TOUCHED BY LYME: More about CDC website’s deleted references to IDSA
In a recent blog, I reported on how the CDC Lyme pages have recently scrubbed away any references to the IDSA Lyme guidelines. They didn’t…
TOUCHED BY LYME: Update of our protest about Dr. Gary Wormser
As I write this on Monday morning, Dec. 4, more than 8500 (update: 10,000+) people have signed our petition to remove Dr. Gary Wormser from…
CDC website removes link to IDSA guidelines. Just lipstick on a pig?
Thanks to Lyme advocates on Facebook this morning for pointing out that the CDC Lyme pages were updated on Dec.1, 2017, with a number of…