Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
TOUCHED BY LYME: Pfeiffer electrifies at MyLymeData2018…and online
Investigative journalist Mary Beth Pfeiffer speaks in quiet, steady, well-modulated tones. But her message packs a powerful punch. It is at once riveting, deeply moving,…
TOUCHED BY LYME: Book calls epidemic “global and dangerous”
The story of Lyme disease in the modern world is maddeningly complex. To even begin to properly tell it, you need to give context about…
TOUCHED BY LYME: Women and Lyme disease. What’s going on?
Sini Anderson is a filmmaker and artist who directed The Punk Singer, a 2013 documentary about musician Kathleen Hanna and her experience with late-stage Lyme…
TOUCHED BY LYME: Book’s “strong case” against Lyme status quo
Kirkus Reviews is an influential publication geared primarily to libraries and bookstores. It recommends books for stores and libraries to purchase before they are available…
TOUCHED BY LYME: Books for your own shelf, or for gifting to others
Looking for suggestions of useful Lyme-related books? Here are some I personally recommend. All are available from online sources. Many are in e-book format as…
TOUCHED BY LYME: Decorated female Air Force pilot now “unfit for duty”
The first patient advocate to address Monday’s inaugural meeting of the Tick-Borne Diseases Working Group in Washington really knocked our socks off. Air Force Colonel…
TOUCHED BY LYME: More about CDC website’s deleted references to IDSA
In a recent blog, I reported on how the CDC Lyme pages have recently scrubbed away any references to the IDSA Lyme guidelines. They didn’t…
TOUCHED BY LYME: Update of our protest about Dr. Gary Wormser
As I write this on Monday morning, Dec. 4, more than 8500 (update: 10,000+) people have signed our petition to remove Dr. Gary Wormser from…
CDC website removes link to IDSA guidelines. Just lipstick on a pig?
Thanks to Lyme advocates on Facebook this morning for pointing out that the CDC Lyme pages were updated on Dec.1, 2017, with a number of…
TOUCHED BY LYME: The healing power of gratitude ornaments
The following is republished from my blog last year. It has been updated slightly. Guest blog by Rachel Leland In November of 2015, I was…
TOUCHED BY LYME: An intriguing short film about Lyme disease
Let’s say you are an up-and-coming actor/writer in Hollywood, in your 20s. You work on some films, you meet people in the industry, and it…
TOUCHED BY LYME: Requiring CDC to use its Lyme funding effectively?
“Performance indicator” is a business term. It’s basically a way to measure how well an organization meets a key objective. In Congress, performance indicators can…