Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
TOUCHED BY LYME: Grandma’s advice on getting through tough times
The following was posted on one of the online Lyme support groups affiliated with LymeDisease.org. The author has given me permission to share, but prefers…
TOUCHED BY LYME: Thanksgiving in the Lyme world, 2018
This is the tenth year I’ve had the privilege of writing a Thanksgiving-themed blog, acknowledging good things taking place in the Lyme community. Sometimes, alas,…
TOUCHED BY LYME: Canadian Lyme lawsuit goes to trial Nov. 26
A Canadian man is suing two doctors and a medical center for failing to appropriately diagnose and treat him for Lyme disease. According to his…
TOUCHED BY LYME: Financial assistance for your child with Lyme
October 31, 2018 is the deadline to apply for this year’s grants from the LivLyme Foundation. LivLyme awards grants to help pay for Lyme treatment…
TOUCHED BY LYME: IDSA admits “shortcomings” in Lyme disease testing
The Lyme community has been saying for years that current “standard” Lyme disease testing leaves too many patients inappropriately undiagnosed. In other words, the tests…
TOUCHED BY LYME: Recognizing maternal-fetal transmission of Lyme disease
Good news: According to the advocacy organization LymeHope, top Canadian health officials have acknowledged the reality of maternal-fetal transmission of Lyme disease. This is a…
TOUCHED BY LYME: Searing Lyme docudrama in PA on Oct. 13
The Pennsylvania Lyme Resource Network is sponsoring a presentation of “the little things.” This theatrical docudrama tells the true story of the Elone family and…
TOUCHED BY LYME: Resources to help you hit the ground running
When you are first learning about Lyme disease, it can be hard to know which way to turn. Here are some links to get you…
TOUCHED BY LYME: Caring for a child with Lyme disease
I was recently privileged to be interviewed by Cindy Kennedy, FNP, about the book I co-authored with Sandra Berenbaum, “When Your Child Has Lyme Disease:…
TOUCHED BY LYME: Nelson Family Project spreads awareness of Lyme disease in Maine
Elizabeth Nelson, 22, has been sick since childhood, with a laundry list of symptoms that would come and go over the years. However, things really…
TOUCHED BY LYME: The NY Times and the question of a Lyme vaccine
The New York Times ran an article today under the headline: Lyme disease is spreading fast. Why isn’t there a vaccine? Most troubling to me…
TOUCHED BY LYME: Why we care so strongly about a potential vaccine
I was recently contacted by a reporter for a national news organization. She was blunt: why is your organization so opposed to a vaccine for…