Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
TOUCHED BY LYME: Happy update on Lyme spokesperson Landau
San Diego TV newswoman Brooke Landau has been a rock star to the Lyme community for many years now. First, there’s the inspiring example of…
TOUCHED BY LYME: Lyme spokesperson Landau to undergo heart surgery
Click here for Update #2, Jan, 7, 2019. Update #1: On Dec. 21, I called the TV station to inquire about Brooke’s surgery. The person…
TOUCHED BY LYME: The healing power of gratitude ornaments
This is the third year I’ve re-published “The Healing Power of Gratitude Ornaments.” This one has been updated slightly from previous years. Guest blog by…
TOUCHED BY LYME: “Not Lyme disease”–or misdiagnosis by geography?
My verbal comments to the federal Tick-Borne Disease Working Group, Dec. 3, 2018. My name is Dorothy Leland and I live in Davis, California. In…
TOUCHED BY LYME: A look at Lyme Mexico and plasmapheresis
I first heard about Lyme Mexico, Dr. Omar Morales, and plasmapheresis from a friend—a father whose 22-year-old son had been gravely infected with Lyme disease,…
TOUCHED BY LYME: Grandma’s advice on getting through tough times
The following was posted on one of the online Lyme support groups affiliated with LymeDisease.org. The author has given me permission to share, but prefers…
TOUCHED BY LYME: Thanksgiving in the Lyme world, 2018
This is the tenth year I’ve had the privilege of writing a Thanksgiving-themed blog, acknowledging good things taking place in the Lyme community. Sometimes, alas,…
TOUCHED BY LYME: Canadian Lyme lawsuit goes to trial Nov. 26
A Canadian man is suing two doctors and a medical center for failing to appropriately diagnose and treat him for Lyme disease. According to his…
TOUCHED BY LYME: IDSA admits “shortcomings” in Lyme disease testing
The Lyme community has been saying for years that current “standard” Lyme disease testing leaves too many patients inappropriately undiagnosed. In other words, the tests…
TOUCHED BY LYME: Recognizing maternal-fetal transmission of Lyme disease
Good news: According to the advocacy organization LymeHope, top Canadian health officials have acknowledged the reality of maternal-fetal transmission of Lyme disease. This is a…
TOUCHED BY LYME: Searing Lyme docudrama in PA on Oct. 13
The Pennsylvania Lyme Resource Network is sponsoring a presentation of “the little things.” This theatrical docudrama tells the true story of the Elone family and…
TOUCHED BY LYME: Resources to help you hit the ground running
When you are first learning about Lyme disease, it can be hard to know which way to turn. Here are some links to get you…