Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
TOUCHED BY LYME: “The only thing to do is push through” says Justin Bieber
The fifth of Justin Bieber’s 10-part autobiographical documentary series has been released on YouTube. It finally gives details about the superstar’s mental health issues and…
TOUCHED BY LYME: CDC allows “possibility” of mother-fetus Lyme transmission
It’s bad enough to have Lyme disease yourself. But a mother’s realization that she has passed the illness to her children during pregnancy brings a…
TOUCHED BY LYME: CDC’s map gives wrong impression. There are no “safe” states.
Here’s what I told the federal Tick-Borne Disease Working Group last week. They gave me three minutes for public comment by telephone. My name is…
TOUCHED BY LYME: “Lyme Action Fly-In” planned for Washington DC
Getting the Kay Hagan TICK Act signed into law was an important step in the right direction for the Lyme community. But the job isn’t…
TOUCHED BY LYME: Justin Bieber’s Lyme disease story lights up the internet
Canadian pop superstar Justin Bieber lit up the internet this week, by announcing to the world that he has Lyme disease. Of course, I don’t…
TOUCHED BY LYME: “Bitten” makes many “Best of 2019” book lists
Bitten: The Secret History of Lyme Disease and Biological Weapons, by Kris Newby, got a lot of attention when published last May. Much of it came…
TOUCHED BY LYME: Senators ask NIAID’s Fauci pointed questions about Lyme
A bi-partisan group of United States senators has sent a letter to Dr. Anthony Fauci, Director of the National Institute of Allergy and Infectious Diseases…
TOUCHED BY LYME: An “evidence-based” definition of chronic Lyme disease
One of the most contentious issues in the so-called “Lyme wars” has been the question of whether a chronic form of Lyme disease exists. On one…
TOUCHED BY LYME: Lyme insurance claims make huge jump in US
FAIR Health is a nonprofit organization that manages the nation’s largest database of privately billed health insurance claims. It seeks to bring transparency to healthcare…
TOUCHED BY LYME: Latest in anti-IDSA/insurers lawsuit: Kaiser settles.
On the Tuesday before Thanksgiving, two documents were filed electronically in the case of Torrey vs. IDSA et al. That’s the federal lawsuit filed by a…
TOUCHED BY LYME: Thanksgiving in the Lyme World, 2019
Challenges faced by the Lyme community can seem like unclimbable mountains. Sometimes it seems like it’s all bad news. To counteract all that negativity, I…
TOUCHED BY LYME: “Chronic Lyme disease steals life.”
Laurie, a Californian who has struggled with both chronic Lyme disease and colon cancer, states that cancer pales in comparison to the pain and suffering…