Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
TOUCHED BY LYME: “Bitten” makes many “Best of 2019” book lists
Bitten: The Secret History of Lyme Disease and Biological Weapons, by Kris Newby, got a lot of attention when published last May. Much of it came…
TOUCHED BY LYME: Senators ask NIAID’s Fauci pointed questions about Lyme
A bi-partisan group of United States senators has sent a letter to Dr. Anthony Fauci, Director of the National Institute of Allergy and Infectious Diseases…
TOUCHED BY LYME: An “evidence-based” definition of chronic Lyme disease
One of the most contentious issues in the so-called “Lyme wars” has been the question of whether a chronic form of Lyme disease exists. On one…
TOUCHED BY LYME: Lyme insurance claims make huge jump in US
FAIR Health is a nonprofit organization that manages the nation’s largest database of privately billed health insurance claims. It seeks to bring transparency to healthcare…
TOUCHED BY LYME: Latest in anti-IDSA/insurers lawsuit: Kaiser settles.
On the Tuesday before Thanksgiving, two documents were filed electronically in the case of Torrey vs. IDSA et al. That’s the federal lawsuit filed by a…
TOUCHED BY LYME: Thanksgiving in the Lyme World, 2019
Challenges faced by the Lyme community can seem like unclimbable mountains. Sometimes it seems like it’s all bad news. To counteract all that negativity, I…
TOUCHED BY LYME: “Chronic Lyme disease steals life.”
Laurie, a Californian who has struggled with both chronic Lyme disease and colon cancer, states that cancer pales in comparison to the pain and suffering…
TOUCHED BY LYME: Moorcroft headlines Central Mass Lyme Conference
If you have Lyme disease, or are a family member/caregiver/loved one of someone who does, there’s one thing I highly recommend that you do. That’s…
TOUCHED BY LYME: Important journal articles you won’t want to miss
I’d like to draw your attention to a treasure trove of recently published journal articles about Lyme disease and related illnesses. Healthcare is an international,…
TOUCHED BY LYME: BBC radio drama takes on Lyme disease
Like many in the Lyme community, my ears perk up when TV or radio shows mention Lyme disease. Sometimes it’s just a toss-off line, played…
TOUCHED BY LYME: “Lyme Brain” – The Impact of Lyme Disease on Your Brain
One day years ago, when my then-14 year old daughter was bedridden and desperately ill with Lyme disease, I read her two chapters of a…
TOUCHED BY LYME: Give us timely information on Working Group
I gave the following remarks as public comment at the September 12 web-based meeting of the federal Tick-Borne Disease Working Group. They are a shortened…