Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
TOUCHED BY LYME: Community grieves loss of Dr. Neil Spector
Dr. Neil Spector died Sunday, June 14. By Monday, the news was spreading like wildfire through the Lyme community. Tributes poured in from literally around…
TOUCHED BY LYME: “Like the devil was inside me,” says comedian of Lyme disease
Back when she was in college, actor and comedian Tori Piskin started having blurry vision and debilitating fatigue. She says it felt like she was…
TOUCHED BY LYME: Treating psychiatric Lyme symptoms with disulfiram
Kristina Bauer, a Lyme advocate, patient and mother of four children with congenital Lyme disease, is the founder of the Texas Lyme Alliance. After she…
TOUCHED BY LYME: The healing power of “realistic, practical hope”
A couple of years ago, on the recommendation of a friend, I started listening to the Ten Percent Happier podcast. Soon after, I started following…
TOUCHED BY LYME: Coronavirus in NYC, both with and without Lyme disease
I get a lot of questions from readers asking how COVID-19 might affect people who also have Lyme disease. A recent blog recounted how one…
TOUCHED BY LYME: Sharing Alex’s Lyme legacy with 1000s of Girl Scouts
Jody Hudson has lived through a parent’s worst nightmare. Starting at age 12, her daughter Alex suffered greatly from unrecognized Lyme disease and mast cell…
TOUCHED BY LYME: Self-isolation, “COVID toes” and projectile vomiting
We all know that Lyme and other tick-borne diseases can affect different people in very different ways. Now, we’re learning that symptoms of COVID-19 can…
TOUCHED BY LYME: MyLymeData is something you can do from home
This is Lyme Awareness Month. In recent years, May is when the Lyme community finds ways to raise the profile of Lyme disease in the…
TOUCHED BY LYME: Persistent Lyme a sticking point for TBD Working Group
I have added some thoughts to what I posted on this topic last week. On April 27, the rubber hit the road for the Tick-Borne…
TOUCHED BY LYME: Post a #FaceMaskSelfie during #CoronaWithLyme month
For the last five years, the international grassroots social media campaign known as the “Lyme Disease Challenge” has urged us to “Take A Bite Out…
TOUCHED BY LYME: Bizarre happenings at the TBD Working Group
It was a crazy moment. “Now we’re going to vote on whether we vote to re-vote on the original question.” (That’s the gist of what…
TOUCHED BY LYME: Horowitz publishes on COVID-19 and glutathione
Why is COVID-19 a relatively mild infection for some people—and fatal for others? That’s a mystery facing patients and their doctors these days. In some…