Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
TOUCHED BY LYME: Townsend Letter focuses on Lyme, mold, & COVID
Townsend Letter, the Examiner of Alternative Medicine, is a print magazine that’s been around for 37 years. It focuses on alternative medical treatments and the…
TOUCHED BY LYME: Working Group cuts public comment in half. Why?
I emailed the following message to the federal Tick-Borne Disease Working Group today. To the TBDWG and staff: As one of the foremost Lyme patient…
TOUCHED BY LYME: TBD Working Group and FACA’s open meeting rules
In a grand stroke of irony, Wednesday’s online meeting of the Tick-Borne Disease Working Group began with a recitation of the panel’s “core values.” These…
TOUCHED BY LYME: New Hampshire Lyme insurance bill heads to governor
Wendy Thomas and five of her six adult children have all been diagnosed with Lyme disease and co-infections. So, she knows a thing or two…
TOUCHED BY LYME: How medical education misses the (Lyme) bull’s-eye
When I first started writing this blog more than a decade ago, I remember being contacted early on by a reader with a question. She…
TOUCHED BY LYME: Community grieves loss of Dr. Neil Spector
Dr. Neil Spector died Sunday, June 14. By Monday, the news was spreading like wildfire through the Lyme community. Tributes poured in from literally around…
TOUCHED BY LYME: “Like the devil was inside me,” says comedian of Lyme disease
Back when she was in college, actor and comedian Tori Piskin started having blurry vision and debilitating fatigue. She says it felt like she was…
TOUCHED BY LYME: Treating psychiatric Lyme symptoms with disulfiram
Kristina Bauer, a Lyme advocate, patient and mother of four children with congenital Lyme disease, is the founder of the Texas Lyme Alliance. After she…
TOUCHED BY LYME: The healing power of “realistic, practical hope”
A couple of years ago, on the recommendation of a friend, I started listening to the Ten Percent Happier podcast. Soon after, I started following…
TOUCHED BY LYME: Coronavirus in NYC, both with and without Lyme disease
I get a lot of questions from readers asking how COVID-19 might affect people who also have Lyme disease. A recent blog recounted how one…
TOUCHED BY LYME: Sharing Alex’s Lyme legacy with 1000s of Girl Scouts
Jody Hudson has lived through a parent’s worst nightmare. Starting at age 12, her daughter Alex suffered greatly from unrecognized Lyme disease and mast cell…
TOUCHED BY LYME: Self-isolation, “COVID toes” and projectile vomiting
We all know that Lyme and other tick-borne diseases can affect different people in very different ways. Now, we’re learning that symptoms of COVID-19 can…