Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
TOUCHED BY LYME: CDC serves up same old wrongheaded Lyme advice
On the face of it, the CDC-sponsored webinar—Lyme Disease Updates and New Educational Tools for Clinicians—seemed like a good idea. I mean, don’t we WANT…
TOUCHED BY LYME: “Main St. Living” spreads the word about Lyme disease
“Main St. Living” is a TV program shown nationally on the YurView network, which is owned by Cox Media. I was invited to appear on…
TOUCHED BY LYME: “The Red Ring” takes a global look at Lyme disease
In 2011, Finnish filmmaker Joonas Berghäll was living his dream, making films about important topics. He went to Kenya to direct a documentary about women’s…
TOUCHED BY LYME: “A very funny play about Lyme disease”
How humorous can a person be when talking about tick-borne illness? Now’s our chance to find out! On Thursday, May 6, there will be a…
TOUCHED BY LYME: Long-haul COVID “isn’t as unique as we thought”
In spring 2020, reports of COVID “long haulers” started showing up online and on TV news shows. These are people whose COVID-19 infections have supposedly…
TOUCHED BY LYME: If your teen has mental health problems, read this
By the time they turn 18, as many as 50 percent of all children and teens will meet the diagnostic criteria for at least one…
TOUCHED BY LYME: Ukulele brings joy and healing, even when bedridden
About seven years ago, musician Rebecca Samples got really sick. About the same time, her then-3-year-old daughter also got really sick. They were living in…
TOUCHED BY LYME: When Lyme disease is mistaken for child abuse
Misdiagnosis of Lyme disease is a huge problem. Doctors too often rely on misunderstood and/or faulty information to rule out the illness. (Examples: there’s no…
TOUCHED BY LYME: Lyme video–“One Little Bite”–packs a big wallop
Monica White once worked as a wildlife biologist and a wildland firefighter. Later, after the birth of her second child, she developed a seriously debilitating…
TOUCHED BY LYME: Advocates zoom with Congress for more Lyme funding
More than 200 Lyme advocates from throughout the US took to their computers on February 24, as part of the 2021 Virtual Lyme Fly-in. Sponsored…
TOUCHED BY LYME: Lyme information for US military is mission critical
A lengthy article in an official government publication lays out why accurate information about Lyme disease is of high importance to the US military. It’s…
TOUCHED BY LYME: NY Times op-ed features the Lyme+ book “Chronic”
Ross Douthat is a political analyst, blogger, author and New York Times columnist. As someone who has suffered for years with chronic Lyme disease, he…