Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
TOUCHED BY LYME: Ukulele brings joy and healing, even when bedridden
About seven years ago, musician Rebecca Samples got really sick. About the same time, her then-3-year-old daughter also got really sick. They were living in…
TOUCHED BY LYME: When Lyme disease is mistaken for child abuse
Misdiagnosis of Lyme disease is a huge problem. Doctors too often rely on misunderstood and/or faulty information to rule out the illness. (Examples: there’s no…
TOUCHED BY LYME: Lyme video–“One Little Bite”–packs a big wallop
Monica White once worked as a wildlife biologist and a wildland firefighter. Later, after the birth of her second child, she developed a seriously debilitating…
TOUCHED BY LYME: Advocates zoom with Congress for more Lyme funding
More than 200 Lyme advocates from throughout the US took to their computers on February 24, as part of the 2021 Virtual Lyme Fly-in. Sponsored…
TOUCHED BY LYME: Lyme information for US military is mission critical
A lengthy article in an official government publication lays out why accurate information about Lyme disease is of high importance to the US military. It’s…
TOUCHED BY LYME: NY Times op-ed features the Lyme+ book “Chronic”
Ross Douthat is a political analyst, blogger, author and New York Times columnist. As someone who has suffered for years with chronic Lyme disease, he…
TOUCHED BY LYME: Read excerpt of “Chronic,” long-awaited book by Phillips and Parish
Chronic: The Hidden Cause of the Autoimmune Pandemic and How to Get Healthy Again is a long-awaited book by Dr. Steven Phillips and Dana Parish….
TOUCHED BY LYME: “Lyme complex” triggers pandemonium in immune system
In 1996, Dr. Daniel Kinderlehrer had practiced integrative medicine for 17 years, focusing heavily on food sensitivities, digestive issues, and nutritional supplementation. Then, he suddenly…
TOUCHED BY LYME: Let’s get more funding. Sign up for virtual “Lyme Fly-In” now
Registration for this year’s event is closed. Stay tuned for future ways to advocate for Lyme funding. In February 2020, advocates from throughout the US…
TOUCHED BY LYME: Tick bite on groin is no laughing matter
I’m a Celebrity…Get Me Out of Here is an Australian reality TV show, similar to Survivor. A group of celebrities is deposited at a wilderness…
TOUCHED BY LYME: CDC’s Lyme numbers finally inching towards reality
The Centers for Disease Control and Prevention (CDC) now estimates that 476,000 people contract Lyme disease in the US every year. They’ve even made it…
TOUCHED BY LYME: Max Fierek fights to ride–and spread Lyme awareness
When you see videos of 21-year-old Max Fierek on a mountain bike, you’ll probably have no inkling of what he’s been doing for the last…