Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
TOUCHED BY LYME: Horowitz responds to the “old persistence debate”
As noted in my most recent blog about the Tick-Borne Disease Working Group, a major sticking point has once more emerged between patient-aligned panelists and…
TOUCHED BY LYME: Highs and lows at TBD Working Group meetings
The federal Tick-Borne Disease Working Group’s recent online meetings gave reasons for Lyme advocates to be both optimistic and pessimistic about the panel’s activities in…
TOUCHED BY LYME: Advocates from 45 states seek more Lyme funding
More than 300 Lyme advocates from throughout the US took part in this week’s Virtual Lyme Fly-in. It was a chance for individuals to educate…
TOUCHED BY LYME: “My Promise to Alex” –a memoir and a call to arms
Alex Hudson grew up in Fresno, California. When she was 11 years old, she started complaining that her legs hurt. That was the beginning of…
TOUCHED BY LYME: When parents are unjustly accused of harming their sick child
If your child has chronic Lyme disease, PANS/PANDAS, mast cell activation syndrome, POTS, or any number of other “medically complex conditions” – you have probably…
TOUCHED BY LYME: The blogs you cared about most in 2021
The team at LymeDisease.org strives to keep you up-to-date on information relevant to the Lyme community. Throughout the year, we regularly post blogs on our…
TOUCHED BY LYME: “Deep Places” explores one man’s Lyme fight
Ross Douthat was a busy man. In addition to his regular opinion column in the New York Times, he wrote books, gave speeches, traveled, interviewed…
TOUCHED BY LYME: Lyme film “Your Labs are Normal” now on Vimeo
Your Labs Are Normal is a powerful film that grew out of the Lyme-related experiences of a Black woman of Puerto Rican descent living in…
TOUCHED BY LYME: Helping families with Lyme re-capture their joy
Gloria Kim, a mother of three from New Jersey, fell into the Lyme world when her son was bitten by a tick at a young…
TOUCHED BY LYME: Raising awareness, one car magnet at a time
A Pennsylvania teenager and her mom have come up with a great way to raise Lyme disease awareness in their community. They want to share…
TOUCHED BY LYME: Helping the brain heal from Lyme and mold
The Chronic Comeback podcast seeks to focus on the positives and steer away from the negatives of chronic illness. Every week, UK-based host Phil Hadfield…
TOUCHED BY LYME: The promise of a targeted drug for Lyme disease
An exciting announcement rippled through the Lyme community recently. Well-known Lyme researcher Dr. Kim Lewis of Northeastern University has identified an antibiotic that appears to…