Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
“Ninja Foods” helps kids with Lyme choose food that heals, not hurts
People being treated for Lyme disease often have to change what they eat. Eliminating sugar and gluten are two biggies. Many must also avoid dairy…
When Lyme is misdiagnosed as mental illness–“A road to nowhere”
Depression, anxiety, and other mental symptoms are frustratingly common in people with long-term Lyme disease. Why is this? Some might attribute it to the fact…
How new treatment approaches help chronic Lyme patients
Pamela Weintraub is a science journalist, Lyme disease survivor, and author of the groundbreaking book Cure Unknown: Inside the Lyme Epidemic. I highly recommend you…
He bucked the establishment to help kids recover from Lyme disease
There has been an outpouring of emotion in the wake of the recent death of Lyme pediatrician Dr. Charles Ray Jones. Many of those who…
TOUCHED BY LYME: Avoiding a heart transplant by treating Lyme disease
Dr. Steven Phillips is a well-known Lyme specialist and co-author of the book: Chronic: The Hidden Cause of the Autoimmune Pandemic and How to Get…
TOUCHED BY LYME: #TickCheckChallenge teaches and inspires
Last year, PA Lyme Resource Network and Invisible International came up with a real winner of a way to encourage kids to do tick checks. In…
TOUCHED BY LYME: Remembering a Lyme disease pioneer
This week, our community has mourned the loss of Nick Harris, PhD, a pioneer in the field of Lyme disease testing and a staunch supporter…
TOUCHED BY LYME: “Ehrlichia,” Rhapsody in Discomfort #6
Dan Flanagan is a professional violinist and composer based in Northern California. He takes pleasure in creating music for solo violins and small ensembles. He often…
TOUCHED BY LYME: “Now is not the time for the state to cheap on tick-borne illnesses”
The Daily Gazette, a locally owned newspaper in Schenechtady, New York, had strong words for state lawmakers in a Sunday April 3 editorial. The headline…
TOUCHED BY LYME: New program helps pay for internet access
One of the most important things a Lyme patient needs is internet access. Probably more than most diseases, in Lyme it’s essential to do your…
TOUCHED BY LYME: Rehabilitating your Lyme-impaired vision
Dr. William V. Padula is a pioneer in the field of how Lyme and other tick-borne diseases can affect your vision. He’s worked with patients…
TOUCHED BY LYME: Repeating incorrect information doesn’t cause it to become correct
In November 2021, a commentary promoting the Infectious Diseases Society of America’s newly updated Lyme disease guidelines was published in the American Journal of Medicine….