Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
Does it take a millionaire’s fortune to heal from Lyme disease?
International supermodel Bella Hadid has an estimated net worth of $25 million. Actress Riley Keough, granddaughter of Elvis Presley, has just been named sole custodian…
6-year-old Arkansas boy fighting for life after tick bite
A short walk in the woods last month turned into a catastrophe for an Arkansas family. Six-year-old Aiden Debusk got bitten by a tick during…
“Words matter.” A new way of thinking about long-haul diseases.
“Infection-associated chronic illness” sounds like a mouthful. But using that name has turned out to be a crucial first step in getting scientists, health officials,…
O’Rourke helps set the tone for NASEM workshop on long haul diseases
“When I was very sick, I really did lie in my bed and wish that someday a group of scientists might come together to take…
There are sex-based differences in Lyme disease. Why this matters.
The latest study from MyLymeData, LymeDisease.org’s patient registry, found significant disparities in how men and women experience Lyme disease. Analyzing data from 2170 MyLymeData participants,…
Seeking a cure for long-Lyme, long-COVID, and other persistent diseases
Why do some people get sick from an infection and then get well—while others with the same infection suffer for months or years with severely…
Children’s books aim to educate about Lyme and ticks
If you want to teach your kids about tick-borne illnesses this Lyme Awareness Month, there are a number of resources to help you do that….
From illness to activism, Olivia just keeps going
I first became aware of Olivia Goodreau about six years ago. I was at my computer, watching the livestream of the first meeting of the…
This easy-to-read guide is packed with useful information
Hacking Lyme Disease: An Action Guide to Wellness is a compilation of articles from Dr. Marty Ross’s informative website “treatlyme.net.” It covers a wide range…
Surveying the interrelationship between Lyme disease and COVID-19
From the beginning of the coronavirus pandemic, questions started swirling through the Lyme community. Two of the biggest ones were: How would COVID affect people…
Prophetic last words: “The stuff I’ve been going through in my brain–ugh”
Popular San Francisco radio host Jeffrey “JV” Vandergrift often spoke on the air about his struggles with Lyme disease. On February 23, on what turned…
Documenting the reality of chronic Lyme patients through photos
Zoe Lu, a fine art photographer based in New York, was diagnosed with neurological Lyme disease and co-infections two years ago. She tells me that for a…