Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
While L.A. burns, BOP ponders limiting vital treatment for firefighters–and Lyme patients
On January 8, the California Board of Pharmacy (BOP) was discussing potential restrictions on Category One sterile compounds, including nebulized and IV glutathione. Glutathione is…
Advocate battles relapse while fighting to #StopTheBOP
The California State Board of Pharmacy (BOP) is contemplating regulatory changes that could limit access to vital alternative treatments used by many Lyme disease patients….
Telehealth will die Dec. 31 without congressional action
Telehealth services—such as video calls with doctors and medical advice via phone or email—are designed to make healthcare more accessible and convenient. These services greatly…
Your support of LymeDisease.org transforms lives
Twenty years ago, when my 13-year-old daughter fell desperately ill with Lyme disease and co-infections, I felt lost. Local doctors denied she could have Lyme…
“Medical Detective” series brings information you need to know
Starting today, LymeDisease.org is publishing weekly installments of the Medical Detective series by Dr. Richard Horowitz, one of the top Lyme-treating doctors in the country….
Thanksgiving reflections on Lyme disease advocacy
In the realm of Lyme disease advocacy, it’s easy to get bogged down by all the challenges we face. Sometimes, it’s helpful to take note…
There’s power in telling stories of healing and resilience
After my daughter Rachel and I wrote a book about our family’s experience with Lyme disease, we were gratified to be interviewed on several Lyme-related…
How Lyme can derail your life–and what it takes to get it back
“One Tick Stopped the Clock” powerfully illustrates how Lyme disease can derail your life, as well as the herculean effort it takes to get back…
From information desert to Lyme news hub: why membership matters
When my family fell into the Lyme world in 2005, there were almost no books on Amazon with “Lyme” in the title. There was little…
Dr. Dave Martz overcame an ALS death sentence with Lyme treatment
As Dave Martz lay dying, an idea serpentined around his mind and would not loosen its grip: Despite the absolute diagnosis and the insistence of…
The thorny question of persistent Lyme, or rather “Lyme IACI”
The National Academies of Sciences, Engineering, and Medicine (known collectively as NASEM) are private, nonprofit institutions that examine challenging issues and offer advice to the…
The strong voice of a teenager with Lyme disease
When my daughter Rachel was 13, she suffered a seemingly simple injury that led to an outbreak of inexplicable, debilitating, body-wide pain. This left her…