Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
Citizen airmen, Lyme advocacy, and a mission to save lives
The Air National Guard (ANG) is a unique branch of the U.S. military that serves both state and federal missions. Unfortunately, when responding to natural…
A father’s song, a daughter’s Lyme disease journey
James Stewart Evans is a seasoned actor with experience in film, television, commercials, and songwriting. But beyond his work in entertainment, he plays another important…
Beyond Pest Control: Greenix’s Commitment to Lyme Disease Advocacy
Greenix Pest Control, a company that serves 16 states, does more than just treat yards and homes for pests such as wasps, ants, spiders, mosquitoes,…
Gordon Medical Forum to explore hidden triggers of chronic illness
The upcoming Gordon Medical Forum: Toxins & Chronic Illness: Lyme, Mycotoxins, and Environmentally Acquired Illness—held from May 15-17—aims to help you navigate this challenging landscape.
Why fighting for Lyme research matters—and a simple way to sound your voice
The following scientists are icons within the Lyme disease community. Each has made transformative contributions to our understanding of this complex illness, its co-infections, and…
Ask Congress to restore the Tick-Borne Disease Research Program
Sometimes, government abbreviations can make your eyes glaze over. But here are a few letters every Lyme patient should know: CDMRP stands for Congressionally Directed…
A Hive of Hope: Beekeeping in Support of Lyme Patients
Kalisha Yankey faced enormous challenges while completing her undergraduate studies and starting a master’s program. For over a decade, she had struggled with undiagnosed Lyme…
Ten years strong: How MyLymeData works to transform Lyme research
A decade ago, LymeDisease.org introduced MyLymeData, now recognized as the largest patient-driven registry for Lyme disease in the United States. What is a patient registry?…
Jesse Colin Young, the voice of ’60s anthem “Get Together,” later sang about Lyme disease
Anyone who was around during the late 1960s is sure to remember these words: “Come on people now…Smile on your brother…Everybody get together…Try to love…
The struggle for a normal life after Lyme disease
You might not think that a mini-series called “Girl at a Bar” is about Lyme disease. But it is. Or more specifically, it’s about a…
David vs. Goliath: Lyme patients and firefighters stall BOP decision again
California’s Board of Pharmacy (BOP) has been trying its darnedest to restrict access to IV glutathione and other alternative treatments. (See here for background on…
Will glutathione treatments survive? Controversial BOP deadline looms.
For almost a year now, the California Board of Pharmacy (BOP) has been trying to impose severe restrictions on so-called “Category 1 sterile compounds,” much…