Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
Zooming with Congress for more Lyme funding
More than 380 Lyme disease advocates from 45 states put on their special green neck scarves and zoomed with congressional offices this week. Their goal?…
PODCAST: What it takes to heal from Lyme disease
Last year, I wrote about Josh and Ethan, two young guys who are making their mark as effective advocates for Lyme disease. (See: “Fierce” Lyme…
Support group question: “Does anyone ever get better?”
A mother gave a heartfelt plea on behalf of her 26-year-old son who has suffered from chronic Lyme for a decade. He has tried numerous…
British soap opera to feature Lyme disease story line
“Coronation Street” is a popular British TV soap opera. Next week, one of its characters is diagnosed with Lyme disease. Here’s more from the website…
The strong connection between microbes and mental illness
Three prominent Lyme-literate physicians—Drs. Robert Bransfield, Charlotte Mao, and Rosalie Greenberg—have recently published a comprehensive review of infectious diseases associated with mental illness. The article,…
Salon.com looks at the plight of chronic Lyme patients
Emblazoned across my computer screen was a headline that chronic Lyme patients can strongly identify with: Like long COVID, Lyme disease can become chronic —…
Sign up now for 2024’s virtual Lyme Fly-In
People often tell me they want to start advocating for better medical care for Lyme patients. I always say that a good entry point is…
34 years of fighting for what Lyme patients need most
Since 1989, Lymedisease.org has fought for what Lyme patients need. Better medical care. Better research. More knowledgeable doctors. And the power that comes from joining…
Thanksgiving in the Lyme world, 2023 edition
In the Lyme community, we can easily get dragged down by the many challenges that surround us and may fail to notice that there are…
NYC marathoner raises over $10,000 for LymeDisease.org
(UPDATE: As of November 17, she has raised $11,195.) Deirdre Keenan–the mother of a young man who has suffered from chronic Lyme disease for years–had…
CDC now lists Lyme as infection that can cause chronic symptoms
A new page on the CDC website is headlined Chronic Symptoms Following Infections. It goes on to say: “Infections can sometimes leave people with symptoms…
Baker Tilly grants wish to support LymeDisease.org
Baker Tilly is a large consulting firm with thousands of employees throughout the United States and the world. It also operates a charity called the…