Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
After 6 years of TBDWG, are we still stuck with IDSA guidelines?
When I was watching last week’s online Tick-Borne Disease Working Group meetings, I got a sick feeling in my stomach. It came at the end…
WNBA’s Elena Della Donne & Nike team up on “Lyme” shoe
Elena Della Donne is a professional basketball player with the Washington Mystics of the Women’s National Basketball Association (WNBA). She has won two WNBA Most…
Some thoughts about 30 years of misdiagnosed Lyme disease
Kat Garza is what’s known in the industry as a “mature model”–pretty much any model over the age of 30. One look at her photos…
“Hijacked by Lyme”: Quebec coroner calls for inquiry into suicide
The death by suicide of a young woman battling Lyme disease garnered international attention recently after her father—a prominent Canadian businessman—shared the news on LinkedIn….
Upcoming screenings of Lyme documentary “The Quiet Epidemic”
Do you remember the story of then-12-year-old Julia Bruzzese? The young Lyme sufferer was in a wheelchair, amidst the throngs of people greeting Pope Francis…
LymeLight Foundation sharpens its focus on congenital Lyme disease
LymeLight Foundation is a non-profit organization that provides treatment grants to children and young adults who have Lyme and other tick-borne diseases. Recipients can use…
Åland, a province of Finland, issues stamp highlighting tick research
I must admit that until recently, I’d never heard of Åland. It turns out, the Åland archipelago consists of some 6500 small islands—most of them…
Conservatorships can trap families in a web of conflicting interests
Deborah Findley’s son, Andrew, grew up with serious health problems, including autism, Lyme disease, and other conditions. Now 21, he is severely disabled and requires…
What the CDC website gets wrong about Lyme disease
Subcommittee reports from the federal Tick-Borne Disease Working Group are now available for you to read on the Health and Human Services website. Should you…
CDC announces major agency overhaul; what about Lyme?
Dr. Rochelle Walensky, the director of the US Centers for Disease Control and Prevention, has announced a major overhaul of the agency she leads. Admitting…
Does your partner have Lyme disease? This book’s for you.
When Fred Diamond fell in love with a woman who had Lyme disease, he didn’t have a clue about what she was going through. Even…
Is there a link between Lyme disease and breast cancer?
Joanne Drayson is a Lyme patient/advocate in the UK. She and I have been Facebook friends for many years. She writes a blog called “Looking…