Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
TOUCHED BY LYME: Why what’s on a death certificate matters so much
Carl Hamrin was born in Sweden, emigrated to the United States, and became a US citizen. His family settled in Maine, where he worked in…
TOUCHED BY LYME: Launching a “moonshot” to cure Lyme by 2030
The Center for Lyme Action (CLA), a nonprofit organization dedicated to increasing federal funding for Lyme disease research, today outlined a strategy to eliminate Lyme…
TOUCHED BY LYME: My conversation with “Lyme Time Podcast with Ali”
Alicia White suffered from bizarre, often painful physical symptoms for years. Consulting numerous doctors, the Southern California resident received many conflicting test results and (mis)diagnoses,…
TOUCHED BY LYME: Legislative update and a Lyme “moonshot”
Bonnie Crater, co-founder of the Center for Lyme Action–a lobbying group seeking more federal funding for Lyme disease–gave a legislative update at the recent LymeMIND…
TOUCHED BY LYME: Resources to get you going in the right direction
LymeDisease.org is one of the foremost Lyme patient advocacy organizations in the United States. We provide a wealth of information on our website–about ticks, Lyme…
TOUCHED BY LYME: Walker & Shapiro fail to change report’s Chapter 7
The federal Tick-Borne Disease Working Group held another online meeting Tuesday. Its upcoming Report to Congress continues to inch towards completion. At this stage of…
TOUCHED BY LYME: Will Working Group acknowledge patient voices?
Prior to this past Tuesday, the last time the public tuned in for an online meeting of the Tick-Borne Disease Working Group was July 8….
TOUCHED BY LYME: Can we cure Lyme disease…or what?
The following question from somebody named Tom showed up in my inbox today: Do you know of a cure for Lyme disease or are we…
TOUCHED BY LYME: “Axel and the True Story of an Imaginary Illness”
Dorothée Lorang, a filmmaker who lives in Nantes, France, has two children. One of them, Axel, is the central character in a remarkable video called…
TOUCHED BY LYME: House approves increased funding for Lyme disease
The House of Representatives today approved a package of spending bills that includes $20 million in Lyme disease funding for the Centers for Disease Control…
TOUCHED BY LYME: Lasting musical tribute to Neil Spector’s legacy
Dana Parish is a singer, songwriter, and author who, along the way, has also turned into a major advocate for Lyme disease patients. In 2014,…
TOUCHED BY LYME: Real-world patient data can help find a cure
I wrote the following article, which appeared in the July 2020 issue of the “Townsend Letter: The Examiner of Alternative Medicine.” MyLymeData is a patient…