Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
TOUCHED BY LYME: Walker & Shapiro fail to change report’s Chapter 7
The federal Tick-Borne Disease Working Group held another online meeting Tuesday. Its upcoming Report to Congress continues to inch towards completion. At this stage of…
TOUCHED BY LYME: Will Working Group acknowledge patient voices?
Prior to this past Tuesday, the last time the public tuned in for an online meeting of the Tick-Borne Disease Working Group was July 8….
TOUCHED BY LYME: Can we cure Lyme disease…or what?
The following question from somebody named Tom showed up in my inbox today: Do you know of a cure for Lyme disease or are we…
TOUCHED BY LYME: “Axel and the True Story of an Imaginary Illness”
Dorothée Lorang, a filmmaker who lives in Nantes, France, has two children. One of them, Axel, is the central character in a remarkable video called…
TOUCHED BY LYME: House approves increased funding for Lyme disease
The House of Representatives today approved a package of spending bills that includes $20 million in Lyme disease funding for the Centers for Disease Control…
TOUCHED BY LYME: Lasting musical tribute to Neil Spector’s legacy
Dana Parish is a singer, songwriter, and author who, along the way, has also turned into a major advocate for Lyme disease patients. In 2014,…
TOUCHED BY LYME: Real-world patient data can help find a cure
I wrote the following article, which appeared in the July 2020 issue of the “Townsend Letter: The Examiner of Alternative Medicine.” MyLymeData is a patient…
TOUCHED BY LYME: Townsend Letter focuses on Lyme, mold, & COVID
Townsend Letter, the Examiner of Alternative Medicine, is a print magazine that’s been around for 37 years. It focuses on alternative medical treatments and the…
TOUCHED BY LYME: Working Group cuts public comment in half. Why?
I emailed the following message to the federal Tick-Borne Disease Working Group today. To the TBDWG and staff: As one of the foremost Lyme patient…
TOUCHED BY LYME: TBD Working Group and FACA’s open meeting rules
In a grand stroke of irony, Wednesday’s online meeting of the Tick-Borne Disease Working Group began with a recitation of the panel’s “core values.” These…
TOUCHED BY LYME: New Hampshire Lyme insurance bill heads to governor
Wendy Thomas and five of her six adult children have all been diagnosed with Lyme disease and co-infections. So, she knows a thing or two…
TOUCHED BY LYME: How medical education misses the (Lyme) bull’s-eye
When I first started writing this blog more than a decade ago, I remember being contacted early on by a reader with a question. She…