Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
TOUCHED BY LYME: Read excerpt of “Chronic,” long-awaited book by Phillips and Parish
Chronic: The Hidden Cause of the Autoimmune Pandemic and How to Get Healthy Again is a long-awaited book by Dr. Steven Phillips and Dana Parish….
TOUCHED BY LYME: “Lyme complex” triggers pandemonium in immune system
In 1996, Dr. Daniel Kinderlehrer had practiced integrative medicine for 17 years, focusing heavily on food sensitivities, digestive issues, and nutritional supplementation. Then, he suddenly…
TOUCHED BY LYME: Tick bite on groin is no laughing matter
I’m a Celebrity…Get Me Out of Here is an Australian reality TV show, similar to Survivor. A group of celebrities is deposited at a wilderness…
TOUCHED BY LYME: CDC’s Lyme numbers finally inching towards reality
The Centers for Disease Control and Prevention (CDC) now estimates that 476,000 people contract Lyme disease in the US every year. They’ve even made it…
TOUCHED BY LYME: Max Fierek fights to ride–and spread Lyme awareness
When you see videos of 21-year-old Max Fierek on a mountain bike, you’ll probably have no inkling of what he’s been doing for the last…
TOUCHED BY LYME: Feeling less “alone, despairing and hopeless”
LymeDisease.org sponsors an online support and discussion forum called “US National Lyme Disease Support Groups.” Once you’ve joined the main group, there are opportunities to…
TOUCHED BY LYME: Working Group holds final meeting. What’s next?
The final meeting of the 2019-2020 Tick-Borne Disease Working Group was held online December 2. The panel’s report should be on its way to Congress…
TOUCHED BY LYME: Jane Barrows keeps fighting for Lyme patients in RI
Jane Barrows, founder of a Lyme support group in Newport, Rhode Island, has been named the “Citizen of the Year” in her region. The recognition…
TOUCHED BY LYME: Contentious TBDWG vote delivers a win for patients
The current session of the federal Tick-Borne Disease Working Group is drawing to a close. This panel has been meeting since June 2019 and its…
TOUCHED BY LYME: Their message is clear. Patients want to get well.
I made these remarks by telephone to the Nov. 17 meeting of the federal Tick-Borne Disease Working Group. I’m Dorothy Leland, vice-president of LymeDisease.org. We…
TOUCHED BY LYME: Shapiro and Walker tried having it both ways. It didn’t work.
The Tick-Borne Disease Working Group is supposed to bring together 14 people—scientists, doctors, health officials, patient advocates—with different areas of expertise and divergent views about…
TOUCHED BY LYME: What’s true Lyme patient representation?
I delivered the following public comments by phone to the federal Tick-Borne Disease Working Group on October 27. I’m Dorothy Leland, vice president of LymeDisease.org,…