Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
TOUCHED BY LYME: MyLymeData is something you can do from home
This is Lyme Awareness Month. In recent years, May is when the Lyme community finds ways to raise the profile of Lyme disease in the…
TOUCHED BY LYME: Persistent Lyme a sticking point for TBD Working Group
I have added some thoughts to what I posted on this topic last week. On April 27, the rubber hit the road for the Tick-Borne…
TOUCHED BY LYME: Post a #FaceMaskSelfie during #CoronaWithLyme month
For the last five years, the international grassroots social media campaign known as the “Lyme Disease Challenge” has urged us to “Take A Bite Out…
TOUCHED BY LYME: Bizarre happenings at the TBD Working Group
It was a crazy moment. “Now we’re going to vote on whether we vote to re-vote on the original question.” (That’s the gist of what…
TOUCHED BY LYME: Horowitz publishes on COVID-19 and glutathione
Why is COVID-19 a relatively mild infection for some people—and fatal for others? That’s a mystery facing patients and their doctors these days. In some…
TOUCHED BY LYME: Coronavirus suggestions for mold patients
Several years ago, after my daughter finished up years of heavy-duty Lyme treatment, she found herself facing yet another challenge: mold toxicity. At the time,…
TOUCHED BY LYME: Helping teens stay sane while quarantining
I’ve long admired the work of the folks at the Digging Deep Project and their mobile game “Shadow’s Edge.” Their work focuses on helping chronically ill…
TOUCHED BY LYME: Recovering COVID patient & Dr. Horowitz tell their story
David Roth is a New Yorker who became quite sick with Lyme disease and Babesia about 10 years ago. He went through grueling treatment under…
TOUCHED BY LYME: Let’s call it physical—not social—distancing, okay?
With the coronavirus pandemic, we’re learning the importance of staying home and avoiding public spaces—and physical encounters with other people. But the term “social distancing”…
TOUCHED BY LYME: Lyme awareness in the time of coronavirus
I was scheduled to address the Redbud Chapter of the Audubon Society on March 19. My talk, “What birders need to know about ticks and…
TOUCHED BY LYME: Proxy votes violate spirit of TBD Working Group
The federal Tick-Borne Disease Working Group held two days of meetings in Philadelphia this week. I watched the live-streamed proceedings via YouTube both days. On…
TOUCHED BY LYME: Flying in to Washington to lobby for increased Lyme funding
They call it a “fly-in.” Advocates from throughout the country converge on the US Capitol to talk with their Senators and Congressional representatives. (Of course,…