Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
TOUCHED BY LYME: Reporting in from ILADS conference
Guest blogger Jennifer Crystal filed this from the 2012 ILADS conference in Boston.
TOUCHED BY LYME: Newspaper demonstrates Lyme is "no small thing"
The Poughkeepsie Journal continues its series on Lyme disease (“No Small Thing”) with a look at the vagaries of Lyme diagnostic testing.
TOUCHED BY LYME: Here's video from San Diego's Lyme protest
LymeDisease.org’s IDSA Lyme protest rally, across from IDSA annual meeting at San Diego Convention Center on Oct. 20, 2012.
TOUCHED BY LYME: Re-cap of San Diego IDSA Lyme protest
Challenge: how can a small group Lyme activists send a message to a huge group of ID doctors?
TOUCHED BY LYME: "Advancing science, improving care"? I don’t think so, IDSA.
The IDSA opens its annual meeting with a slogan that rings false for Lyme patients.
TOUCHED BY LYME: "Chronically ill friends–I know you. I believe you. I understand you."
Heartfelt encouragement from the writer of “My Lyme Symphony.”
TOUCHED BY LYME: Former military wife now a Lyme warrior
Sharing her story has helped Kim Gettys become one of the top fundraisers for the 2012 Lymewalks.
TOUCHED BY LYME: Lyme Disease and Romney’s Microtargeting Strategy
So how exactly did Lyme disease get all bollixed up with presidential politics? Guest blogger Ben Domenech, a GOP political commentator, gives his take on…
TOUCHED BY LYME: Romney’s mailer tangles Lyme disease with partisan politics
“When you mix presidential politics with Lyme disease politics, you get some pretty strange chemical reactions.”
TOUCHED BY LYME: Coming back to life after Lyme disease
Guest blogger Jennifer Crystal explores what it means to re-enter the world after chronic illness.
TOUCHED BY LYME: Can you get disability benefits for Lyme disease?
Guest blogger Peter Burke, an attorney who focuses on disability law, summarizes some of the challenges faced by Lyme patients.
TOUCHED BY LYME: Search-and-rescue teams may be at high risk for tick diseases
How to protect yourself in tick territory.