Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
TOUCHED BY LYME: Returning to the scene of the crime
Guest blogger Jennifer Crystal revisits the spot where a tick gave her Lyme disease 15 years ago.
TOUCHED BY LYME: A "Manhattan project" for Lyme disease?
A prominent Lyme-treating physician from New York calls for an all-out effort to combat the Lyme epidemic.
TOUCHED BY LYME: Facebook chat with NY Lyme reporter tonight
Log in to chat with investigative reporter Mary Beth Pfeiffer, who wrote a series on Lyme in the Poughkeepsie Journal
TOUCHED BY LYME: Massachusetts activist slams back at Lyme disease
Lyme activist Trish McCleary tells how and why she founded “S-L-A-M.”
TOUCHED BY LYME: CDC's "Lyme stories" leave out the big picture
A new feature on the Centers for Disease Control’s website takes a narrow view of Lyme diagnosis.
TOUCHED BY LYME: A second helping of "what not to say" to those sick and in pain
Guest columnist Toni Bernhard’s recent blog about what not to say to sick people brought a huge response from readers. Here’s more on the subject…
TOUCHED BY LYME: "I know what Lyme has done to you and how narrowly you have survived thus far."
Letter to a Lyme patient, written in the style of a famous essay by James Baldwin.
TOUCHED BY LYME: What the chronically ill DO want to hear you say
Last week, guest blogger Toni Bernhard told us what NOT to say. Here are her suggestions for things TO say to those who are sick…
TOUCHED BY LYME: The "take-aways" from WBUR's Lyme panel
Boston NPR radio station WBUR included a panel discussion of Lyme disease as part of its week-long series “Living with Lyme.” Guest blogger Jennifer Crystal…
TOUCHED BY LYME: What not to say when someone is sick or in pain
Guest columnist Toni Bernhard, who blogs on the Psychology Today website, says even well-intentioned people may not know how to talk to the chronically ill…
TOUCHED BY LYME: "Babelicious" and other household names
Guest blogger Jennifer Crystal ponders how to make tick-borne diseases easier to pronounce and remember.
TOUCHED BY LYME: No Lyme in Kentucky? Says who?
A minister’s experience gives rise to a new Lyme support group in Kentucky.