Lyme Blog Posts
A message from LymeDisease.org’s Founder and President
by Phyllis Mervine I started this organization more than 30 years ago to empower people with Lyme disease. Our aim: to change a medical system…
TOUCHED BY LYME: Feeling less “alone, despairing and hopeless”
LymeDisease.org sponsors an online support and discussion forum called “US National Lyme Disease Support Groups.” Once you’ve joined the main group, there are opportunities to…
Discussing IDSA Lyme guidelines on “Outbreak News” podcast
Lorraine Johnson, CEO of LymeDisease.org, was interviewed on a podcast by Robert Herriman, editor of Outbreak News Today. The pair discussed the new Lyme treatment…
IDSA issues new, separate treatment guidelines for babesiosis
The Infectious Disease Society of America (IDSA) has issued new treatment guidelines for the tick-borne infection babesiosis. Previously, the IDSA’s recommendations for treating the illness…
Investigating connections between Bartonella and psychiatric conditions
By Tracy Peake, North Carolina State University Bartonella bacteria are increasingly recognized as an emerging infectious disease threat. A new study by North Carolina State…
LYME SCI: Don’t medically abandon people with neurological Lyme
I sent the following written comments to the Tick-Borne Disease Working Group before its last meeting on December 2. I’d like to thank the Tick-Borne…
Watch the trailer for “The Monster Inside Me” Lyme documentary
“The Monster Inside Me” is a documentary film seen through the point of view of a couple living and coping with Lyme disease. According to…
TOUCHED BY LYME: Working Group holds final meeting. What’s next?
The final meeting of the 2019-2020 Tick-Borne Disease Working Group was held online December 2. The panel’s report should be on its way to Congress…
LYMEPOLICYWONK: 10 things you should know about new IDSA guidelines
The Infectious Diseases Society of America (IDSA) just released its new Lyme guidelines. They are 48 pages long and will take time to digest, but…
Denying Lyme treatment is “deeply institutionalized discrimination”
Holly Ahern gave the following remarks by telephone to the Tick-Borne Disease Working Group’s December 2 meeting. Based on the proceedings of this Tick-borne Disease…
Leveraging the wealth of available data to help Lyme patients recover
Mira Shapiro delivered the following public comment by telephone to the Tick-Borne Disease Working Group on December 2. My name is Mira Shapiro. I am…
Let’s arm our children with powerful “One Health” knowledge
Amy LeBoeuf delivered the following remarks by telephone to the Tick-Borne Disease Working Group on December 2. My name is Amy LeBoeuf, and I would…