Lyme Blog Posts
Tweet summary of TBD Working Group’s final meeting of 2020
The last meeting of the 2019-2020 Tick-Borne Disease Working Group was held online on Dec.2. LymeDisease.org’s Lonnie Marcum live-tweeted the proceedings. Scroll below to see…
LYMEPOLICYWONK: When decisions are foregone conclusions
I gave the following remarks by telephone at the December 2 meeting of the Tick-Borne Disease Working Group. Good morning. I’m Lorraine Johnson, the CEO…
Unethical to withhold viable Lyme treatments, while awaiting more research
Julia Wagner delivered the following public comment by telephone to the federal Tick-Borne Disease Working Group on December 2. Good morning. I am Julia Wagner,…
Deaf woman with Lyme: “No time for anyone who does not believe me”
By Laurie Lett I have been deaf from birth. I use my hands for communication purposes – sign language and writing. My hands are my…
IDSA publishes new Lyme disease treatment guidelines
The following is a press release from the Infectious Disease Society of America. Analysis from LymeDisease.org will be forthcoming. New evidence-based clinical practice guidelines for…
Looking back on her teen years of Lyme-related pain. Life’s better now!
By Resiliently Rachel I sit in my wheelchair at the front office of my junior high. Tears sting my eyes as I explain to the…
TOUCHED BY LYME: Jane Barrows keeps fighting for Lyme patients in RI
Jane Barrows, founder of a Lyme support group in Newport, Rhode Island, has been named the “Citizen of the Year” in her region. The recognition…
Patients can respond very differently to disulfiram. Be cautious.
by Daniel A. Kinderlehrer MD Linda was 47 years old in 1990, when she became ill after visiting a park in Florida. Her “mystery illness”…
TOUCHED BY LYME: Contentious TBDWG vote delivers a win for patients
The current session of the federal Tick-Borne Disease Working Group is drawing to a close. This panel has been meeting since June 2019 and its…
All 8 insurance companies settle in Lyme patient lawsuit against IDSA
All eight insurance companies named in Torrey v. Infectious Diseases Society of America have settled the case, according to journalist Mary Beth Pfeiffer on Twitter….
Public comment: Does that sound like a religious belief, Dr. Walker?
Carl Tuttle gave the following comments via telephone to the Nov. 17 meeting of the federal Tick-Borne Disease Working Group. We have added links for…
Public comment: Genetic variations make Lyme harder to treat
Yan Zelener delivered the following public comments by telephone at the Nov. 17 meeting of the federal Tick-Borne Disease Working Group. My name is Yan…