Lyme Blog Posts
“Lyme denial-itis” is pervasive. It stole my daughter’s childhood.
Janice Sutton gave the following remarks to the Tick-Borne Disease Working Group on October 27. As a critical care nurse for over a decade, I…
Horowitz: Dapsone + doxy + rifampin very effective for chronic Lyme
A groundbreaking in vivo clinical study conducted by Dr. Richard Horowitz has found that an eight-week course of the leprosy drug dapsone combined with doxycycline…
A simple, quick and cost-free fix–ditch the misleading Lyme map
Phyllis Mervine delivered the following verbal comments to the Tick-Borne Disease Working Group on October 27. My name is Phyllis Mervine. I’m the President and…
Tweet summary of October 27 TBD Working Group meeting
LymeDisease.org’s Lonnie Marcum live-tweeted the October 27 online meeting of the federal Tick-Borne Disease Working Group. Click below to scroll through the day’s collection of…
TOUCHED BY LYME: What’s true Lyme patient representation?
I delivered the following public comments by phone to the federal Tick-Borne Disease Working Group on October 27. I’m Dorothy Leland, vice president of LymeDisease.org,…
TOUCHED BY LYME: Why what’s on a death certificate matters so much
Carl Hamrin was born in Sweden, emigrated to the United States, and became a US citizen. His family settled in Maine, where he worked in…
TOUCHED BY LYME: Launching a “moonshot” to cure Lyme by 2030
The Center for Lyme Action (CLA), a nonprofit organization dedicated to increasing federal funding for Lyme disease research, today outlined a strategy to eliminate Lyme…
TOUCHED BY LYME: My conversation with “Lyme Time Podcast with Ali”
Alicia White suffered from bizarre, often painful physical symptoms for years. Consulting numerous doctors, the Southern California resident received many conflicting test results and (mis)diagnoses,…
“Gaslighting” by some doctors can undermine the chronically ill
By Carolyn Degnan One of the biggest problems that chronically ill patients face is “gaslighting” from their physicians/practitioners. I’ve been familiar with that term when…
TOUCHED BY LYME: Legislative update and a Lyme “moonshot”
Bonnie Crater, co-founder of the Center for Lyme Action–a lobbying group seeking more federal funding for Lyme disease–gave a legislative update at the recent LymeMIND…
Analyzing “rash selfies” helps early detection of Lyme disease
Johns Hopkins Medicine and Johns Hopkins Applied Research Laboratory (APL) researchers have shown that cell phone images of rashes taken by patients can be evaluated…
HHS and Cohen Foundation launch $25 million “LymeX” prize challenge
Press release from the US Department of Health and Human Services: Today, at the virtual LymeMIND conference, the U.S. Department of Health and Human Services…