Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
Watch Dr. Horowitz’s “save your brain” webinar here
Experts estimate that 42% of people over age 55 will develop some form of dementia during their lifetime. Dr. Richard Horowitz has an important message…
When chronic Lyme shapes a life and the music that comes from it
Artistry with Heart is a podcast devoted to the inner life of artists — the doubts, the breakthroughs, the healing, and the deeply human stories…
One Lyme drug didn’t pan out, but a better option is on the horizon
Back in 2021, the Lyme community was buzzing about a potential new treatment called hygromycin A. It came out of Dr. Kim Lewis’s lab at…
Lyme awareness matters more than ever this May
Lyme Disease Awareness Month is a time to get people’s attention. It’s a moment each year when we metaphorically shake folks by the shoulders and…
Watch this Lyme advocate tell Congress what they need to hear
Holly Ahern, a professor, research scientist, mother of a daughter with Lyme disease, and long‑time Lyme advocate, testified before Congress this week, and she did…
Study reveals what pregnant Lyme patients want and need most
For too long, parents confronting Lyme disease during pregnancy have been left to fend for themselves. The science remains unsettled, the clinical guidance is uneven,…
National media are finally asking Lyme patients what they think
Last week, we highlighted CNN’s interview with our CEO, Lorraine Johnson, about the challenges facing Lyme patients and the complexities surrounding a potential new vaccine….
“A Sour Taste”: Lorraine Johnson talks Lyme vaccine concerns with CNN
Last week, I wrote about Pfizer’s Lyme vaccine candidate and the questions many in the Lyme community still have about it. This week, CNN published…
What should we make of Pfizer’s new Lyme vaccine results?
Pfizer and Valneva released new data this week from their long‑running Lyme vaccine trial, and the results are… complicated. Instead of delivering a straightforward answer,…
What’s the real reason people don’t protect themselves from ticks?
If you’ve spent any time navigating the world of tick‑borne disease, you already know this: people don’t always take steps to protect themselves, even when…
MyLymeData surpasses 20,000 participants — why this milestone matters
LymeDisease.org is proud to announce a major milestone: MyLymeData now has more than 20,000 participants. This achievement strengthens what was already true—MyLymeData is one of…
Does HHS Lyme roundtable signal a new era for patients?
On December 15, Health and Human Services Secretary Robert F. Kennedy Jr. convened a long‑awaited roundtable on Lyme disease. The event brought together patients, clinicians,…