TOUCHED BY LYME: Same-old, same-old from the CDC
The agency stubbornly adheres to its party line, denying care to suffering Lyme patients.
Author | LymeDisease.org
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LYMEPOLICYWONK: CDC Tells Poughkeepsie Journal Long Term Antibiotics Not Warranted; I Respond
Dr. Lyle Petersen of the CDC wrote an editorial for the Poughkeepsie Journal in response to the remarkable series of articles by Mary Beth Pfeiffer on Lyme Disease. In his letter, Dr. Petersen restates the IDSA/CDC perspective patients have long heard. Lyme disease is easy to diagnose and treat, but for those with chronic Lyme treatment is both ineffective and dangerous. He proposed that we work on preventing Lyme disease and early diagnosis and treatment—both laudable goals, but not at the expense of treating seriously ill patients. My response to his letter, which I posted on the Poughkeepsie website (and encourage you to respond there as well) follows.
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TOUCHED BY LYME: Taking back the Lyme research agenda, one project at a time
How the Lyme community stepped up–with donations big and small–to buy a sophisticated microscope and support the groundbreaking research of Dr. Eva Sapi. (Pssst: still time to donate!)
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GUEST BLOG: Lone star tick implicated in Lyme disease in the South
Liz Schmitz, of the Georgia Lyme Disease Association, discusses important new research indicating that yes, folks, there is indeed Lyme disease in the southern US.
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TOUCHED BY LYME: Got MALC? Try this interactive tick & Lyme map
California unveils a new way to display tick and Lyme information. Will it help those who need it most?
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GUEST BLOG: Why medical research should include the patient perspective
Dr. Leana Wen discusses how PCORI–Patient-Centered Outcomes Research Institute–hopes to change how medical research is approached in the US.
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TOUCHED BY LYME: The "all-in-your-head" write-off for Lyme disease
Guest blogger Jennifer Crystal explores something almost every Lyme patient comes up against at some point in their health journey.
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TOUCHED BY LYME: How to protect yourself in tick territory
What everybody needs to know about tick protection.
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TOUCHED BY LYME: Yolanda Foster's Lyme update on Facebook
The “real housewife” and “real Lyme patient” posted the following information about her Lyme status for Facebook fans.
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TOUCHED BY LYME: Ski champ shares her “LymeLight” in new film
Watch her inspirational 30-minute documentary for free on-line
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