NEWS: LymeDisease.org's top advocate named to PCORI panel
Lorraine Johnson will represent patient viewpoint to scientific research funders
Author | LymeDisease.org
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TOUCHED BY LYME: Protect your children from tick-borne diseases
Storyteller and guest blogger John McCormick recounts a cautionary tale about his family’s experience with Lyme disease.
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TOUCHED BY LYME: Apples top this year's "Dirty Dozen" food list
The Environmental Working Group helps you determine which foods are most–and least–contaminated by pesticides.
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TOUCHED BY LYME: Lyme disease information list
Looking to learn about Lyme disease? Start here.
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NEWS: Yolanda Foster's heart-wrenching speech at Time for Lyme GALA
The “Real Housewife” star said “My brain was no longer able to pull information to form sentences. My memory was blank.”
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TOUCHED BY LYME: Recovery is a long, slow, balancing act
Guest blogger Jennifer Crystal says there is no “magic secret” to getting over chronic Lyme disease.
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TOUCHED BY LYME: NPR’s “Unfit for Work” has troubling implications for those disabled by Lyme disease
Guest blogger Barbara Arnold, an attorney who specializes in helping Lyme patients get the disability payments due to them, questions the underlying assumptions put forth in this radio series.
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TOUCHED BY LYME: “Kingdom of the sick” is a stark place, indeed
Book review of “In the Kingdom of the Sick: A Social History of Chronic Illness in America,” by Laurie Edwards.
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LYMEPOLICYWONK: More on Who’s Who and What’s What – NIH Dr. Phil Baker Responds to Blog on American Lyme Disease Foundation
Last week, I posted a blog regarding the IDSA stealth front organization, the American Lyme Disease Foundation (ALDF). I pointed out that the organization masquerades as a patient organization or an independent source of information, but is really just the members of the IDSA Lyme guidelines panel and a couple of businessmen. I highlighted the fact that Dr. Phil Baker who was responsible for overseeing the Lyme clinical trials at the NIH prior to his retirement is now the Executive Director at the ALDF. I also raised questions about his management of two NIH trials under his watch, the Klempner trial and the Embers trial. Both trials were funded around the same time. Klempner, which concluded that chronic infection did not persist and that treatment was ineffective, was published in 2004. Embers, which found persistent infection notwithstanding treatment, was not published until almost ten years later. During the interim, the Klempner trial was relied on by the IDSA to deny patients treatment for chronic Lyme and no one mentioned that the companion study, the Embers trial, was still pending. Dr. Baker took issue with my post (see below), and I respond.
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