Lyme Blog Posts
What to do when Lyme disease triggers “complex PTSD”
by Shona Curley Recently I spoke with my medical intuitive, Adrienne, on the phone. Yes, I know—how California! But this lovely woman has helped me…
“Rising Above Lyme Disease” offers guidance for patients and families
By Julia Greenspan, ND Chronic Lyme disease and associated co-infections are creating a chronic disease juggernaut that is moving through the environment, the human body…
Medical stalemate: what causes continuing symptoms after Lyme treatment?
by Holly Ahern, MS, MT (ASCP) In 2018, I served on a Subcommittee of the Department of Health and Human Services (HHS) Tick Borne Disease…
Overcoming Lyme disease, writing a book, going to college
by Brian Benson, Bridgewater State University If you met Patrick Collins as a young teen, you’d be hard-pressed to imagine him jogging around his neighborhood, never mind…
Lessons I’ve learned in 7 years with Lyme disease
by Anthony Wallace In an all too familiar tale, I was diagnosed with Lyme disease after three years of mysterious symptoms and a lot of…
Why a Lyme and PANDAS mom didn’t answer your email
by Lisa Kilion A recent New York Times opinion piece, Why I Didn’t Answer Your Email, discussed reasons why a parent of neurotypical, healthy children…
My Top 10 Tips for Traveling “Smart” with Lyme disease
Many people must travel for Lyme treatment. Unable to find the help she needed in New England, Kate Bowen of Vermont decided to visit a…
From darkness to light: SIDM tells the Lorraine Johnson story
The Society to Improve Diagnosis in Medicine (SIDM) is a non-profit organization that focuses on the issue of diagnostic error. Misdiagnosis is quite common in Lyme…
History of Lyme disease in the US, by Dr. Joseph Burrascano
Dr. Joseph Burrascano, one of the world’s leading experts on the diagnosis and treatment of Lyme disease, is a founding member of the International Lyme…
Who gets to decide what constitutes scientific evidence for chronic Lyme?
Verbal Comments to the Tick-borne Diseases Working Group, December 3, 2018 by Phyllis Mervine I’m Phyllis Mervine, Founder and President of the patient advocacy nonprofit…
How I stopped chasing a “cure”–and healed from Lyme disease
by Amy B. Scher At 28 years old, and after years of suffering from medical issues that no doctor across the U.S. could unravel, I…
Lyme disease brings both unavoidable losses and unsung heroes
By Donna Falcone Picture a couple raising two sons, hundreds of miles from any other family. The husband comes home from work and finds his…