Lyme Blog Posts
COVID-19’s daunting challenges for families with Lyme and PANS/PANDAS
by Sandra Berenbaum, LCSW, BCD While the world deals with COVID-19—how to be safe, how to protect our citizens and essential medical workers, and the…
Does your child have a mental illness or a medical disorder?
By Daniel A. Kinderlehrer, MD Brad’s parents brought him to see me when he was eleven years old. He was scratched by a cat at…
Condemned to a life of debilitating illness? There’s a better way.
Phyllis Mervine gave the following public comments via telephone, during the recent federal Tick-Borne Disease Working Group meeting. The single most important thing the Working…
Accelerating pace, increasing depth and breadth of Lyme disease research
Mira Shapiro delivered the following public comments at the recent meeting of the federal Tick-Borne Disease Working Group in Philadelphia. My name is Mira Shapiro….
MyLymeData helps build a collaborative research engine for Lyme disease
Melissa Potter delivered the following remarks to the federal Tick-Borne Disease Working Group earlier this week in Philadelphia. Good morning, my name is Melissa Potter….
CDC’s recommendations for Lyme epitomize institutional bias
Dr. Elizabeth Maloney delivered the following public comments to the federal Tick-Borne Disease Working Group this week. Good morning committee members, I’m Dr. Elizabeth Maloney….
Why the controversy over chronic Lyme disease is important to everyone
The following is a response to an opinion piece in the Connecticut Mirror newspaper. In it, two IDSA doctors charge that chronic Lyme disease is a…
Maternal-fetal Lyme transmission must be acknowledged–and researched
Sue Faber delivered the following remarks during public comment at the recent Federal Tick-Borne Disease Working Group in Washington DC. My name is Sue Faber,…
My high-risk county doesn’t appear on CDC’s Lyme disease maps
Phyllis Mervine, Founder and President of LymeDisease.org, delivered the following public comments at the recent meeting of the federal Tick-Borne Disease Working Group. I live…
What is disulfiram and why is it sparking excitement in Lyme community?
by Kristina Bauer and Cozette Moysa Disulfiram is a chemical compound first synthesized in the late 1800s. By the early 1900s, it was used as…
Lyme disease patients fight for their lives while researchers squabble
By Dr. Steven Phillips For patients, there is often nothing more soul-crushing than being inexplicably sick with doctor after doctor having no answers, or getting the…
A patient interviews Dr. Kinderlehrer about disulfiram for Lyme disease
By Kristina Bauer I contracted Lyme disease and co-infections in 1980, in Fairview Heights, Illinois. I remained undiagnosed and untreated until 2012. One year later,…