Lyme Blog Posts
Maternal-fetal Lyme transmission must be acknowledged–and researched
Sue Faber delivered the following remarks during public comment at the recent Federal Tick-Borne Disease Working Group in Washington DC. My name is Sue Faber,…
My high-risk county doesn’t appear on CDC’s Lyme disease maps
Phyllis Mervine, Founder and President of LymeDisease.org, delivered the following public comments at the recent meeting of the federal Tick-Borne Disease Working Group. I live…
What is disulfiram and why is it sparking excitement in Lyme community?
by Kristina Bauer and Cozette Moysa Disulfiram is a chemical compound first synthesized in the late 1800s. By the early 1900s, it was used as…
Lyme disease patients fight for their lives while researchers squabble
By Dr. Steven Phillips For patients, there is often nothing more soul-crushing than being inexplicably sick with doctor after doctor having no answers, or getting the…
A patient interviews Dr. Kinderlehrer about disulfiram for Lyme disease
By Kristina Bauer I contracted Lyme disease and co-infections in 1980, in Fairview Heights, Illinois. I remained undiagnosed and untreated until 2012. One year later,…
“Kiss of Lyme” author: What I needed more than anything was hope
By Ian McCartney One bright, sunny day in August 2008, a bug no bigger than a raspberry seed attached itself to the back of my…
Lyme advocates push for funding and accountability–and Congress agrees
Advocates on behalf of patients with Lyme and other tick-borne diseases made some headway on Capitol Hill in 2019. Of course, much work still lies…
In partnership with you, we are moving the Lyme needle forward
By Phyllis Mervine Thirty years ago, when I started this organization, I never dreamed we would still be fighting the same battles three decades later….
Watch Dr. Neil Spector’s presentation from LymeMIND conference
Neil Spector, MD, is one of the most highly regarded presenters in the Lyme disease community. He is a professor and researcher at Duke University School…
Minnesota medical board ties the hands of Lyme-treating doctors
Minnesota’s state medical board recently lifted a moratorium on prosecuting physicians for treating Lyme outside of the strict guidelines of the Infectious Diseases Society of…
Many patients find disulfiram a “game-changing” Lyme treatment
By Daniel A. Kinderlehrer MD In a previous blog about disulfiram, in July, 2019, (1) I reported on preliminary data, both in vivo and in vitro,…
24 Things Everyone Should Know About Being in Remission
I recently had a long, meaningful phone conversation with my only friend in remission. She and I have very parallel health journeys, having our lowest…