Lyme Blog Posts
Deaf woman with Lyme: “No time for anyone who does not believe me”
By Laurie Lett I have been deaf from birth. I use my hands for communication purposes – sign language and writing. My hands are my…
Looking back on her teen years of Lyme-related pain. Life’s better now!
By Resiliently Rachel I sit in my wheelchair at the front office of my junior high. Tears sting my eyes as I explain to the…
Patients can respond very differently to disulfiram. Be cautious.
by Daniel A. Kinderlehrer MD Linda was 47 years old in 1990, when she became ill after visiting a park in Florida. Her “mystery illness”…
Public comment: Does that sound like a religious belief, Dr. Walker?
Carl Tuttle gave the following comments via telephone to the Nov. 17 meeting of the federal Tick-Borne Disease Working Group. We have added links for…
Public comment: Genetic variations make Lyme harder to treat
Yan Zelener delivered the following public comments by telephone at the Nov. 17 meeting of the federal Tick-Borne Disease Working Group. My name is Yan…
Phyllis Mervine’s public comment to TBD Working Group
Phyllis Mervine delivered the following remarks by telephone at the November 17 meeting of the Tick-Borne Disease Working Group. Good morning. I am Phyllis Mervine,…
“Longest list of Lyme symptoms ever–the prize you never want to win”
Mary Lorusso-DiBara gave the following public comments at the November 17 online meeting of the federal Tick-Borne Disease Working Group. Today I represent our family…
“Lyme denial-itis” is pervasive. It stole my daughter’s childhood.
Janice Sutton gave the following remarks to the Tick-Borne Disease Working Group on October 27. As a critical care nurse for over a decade, I…
A simple, quick and cost-free fix–ditch the misleading Lyme map
Phyllis Mervine delivered the following verbal comments to the Tick-Borne Disease Working Group on October 27. My name is Phyllis Mervine. I’m the President and…
“Gaslighting” by some doctors can undermine the chronically ill
By Carolyn Degnan One of the biggest problems that chronically ill patients face is “gaslighting” from their physicians/practitioners. I’ve been familiar with that term when…
Would my son have his Lyme diagnosis without my mother’s instinct?
by Arlene Brailey For eight years, my son has been fighting a war against Lyme disease, with me alongside him. I have endured countless sleepless…
Tuttle directs pointed questions to TBD Working Group member Shapiro
Carl Tuttle, a long-time Lyme activist from New Hampshire, gave the following remarks by telephone to the Tick-Borne Disease Working Group on Sept. 15. This…