Lyme Blog Posts
Phyllis Mervine’s public comment to TBD Working Group
Phyllis Mervine delivered the following remarks by telephone at the November 17 meeting of the Tick-Borne Disease Working Group. Good morning. I am Phyllis Mervine,…
“Longest list of Lyme symptoms ever–the prize you never want to win”
Mary Lorusso-DiBara gave the following public comments at the November 17 online meeting of the federal Tick-Borne Disease Working Group. Today I represent our family…
“Lyme denial-itis” is pervasive. It stole my daughter’s childhood.
Janice Sutton gave the following remarks to the Tick-Borne Disease Working Group on October 27. As a critical care nurse for over a decade, I…
A simple, quick and cost-free fix–ditch the misleading Lyme map
Phyllis Mervine delivered the following verbal comments to the Tick-Borne Disease Working Group on October 27. My name is Phyllis Mervine. I’m the President and…
“Gaslighting” by some doctors can undermine the chronically ill
By Carolyn Degnan One of the biggest problems that chronically ill patients face is “gaslighting” from their physicians/practitioners. I’ve been familiar with that term when…
Would my son have his Lyme diagnosis without my mother’s instinct?
by Arlene Brailey For eight years, my son has been fighting a war against Lyme disease, with me alongside him. I have endured countless sleepless…
Tuttle directs pointed questions to TBD Working Group member Shapiro
Carl Tuttle, a long-time Lyme activist from New Hampshire, gave the following remarks by telephone to the Tick-Borne Disease Working Group on Sept. 15. This…
Erin Walker: “We need tests, treatment, and recognition that Lyme is real”
Erin Walker delivered the following remarks by telephone to the Tick-Borne Disease Working Group on Sept. 15, 2020. My name is Erin Walker and I…
Lyme has devastated my family–physically, financially, and emotionally
The following was submitted as a written public comment to the federal Tick-Borne Disease Working Group. By Monica White I am writing today as an…
Video tribute to Dr. Neil Spector, Lyme hero, with music by Dana Parish
Lyme advocate Savannah Marcum has compiled the following video tribute to Dr. Neil Spector, with background music by Dana Parish. (Parish wrote the song based…
After the devastation of Lyme disease, a family finds healing
by Anna Penenberg Lyme disease can devastate families and spin your whole world upside down. I know that is the case for my family. Before…
10 years of headaches, vertigo and other pains dismissed as “depression”
By Rhisa Parera I was born in Brooklyn in 1990, to a Puerto Rican mom and an Irish and Spanish dad. I was raised in…