Lyme Blog Posts
Erin Walker: “We need tests, treatment, and recognition that Lyme is real”
Erin Walker delivered the following remarks by telephone to the Tick-Borne Disease Working Group on Sept. 15, 2020. My name is Erin Walker and I…
Lyme has devastated my family–physically, financially, and emotionally
The following was submitted as a written public comment to the federal Tick-Borne Disease Working Group. By Monica White I am writing today as an…
Video tribute to Dr. Neil Spector, Lyme hero, with music by Dana Parish
Lyme advocate Savannah Marcum has compiled the following video tribute to Dr. Neil Spector, with background music by Dana Parish. (Parish wrote the song based…
After the devastation of Lyme disease, a family finds healing
by Anna Penenberg Lyme disease can devastate families and spin your whole world upside down. I know that is the case for my family. Before…
10 years of headaches, vertigo and other pains dismissed as “depression”
By Rhisa Parera I was born in Brooklyn in 1990, to a Puerto Rican mom and an Irish and Spanish dad. I was raised in…
Helping our child through Lyme disease shouldn’t be this hard
By Jessica Egan Our 11-year-old daughter Lucy had three tick-borne diseases starting in 2018: Lyme disease, babesiosis, and mycoplasma pneumonia. We don’t know when or…
How stomach massage for gastroparesis can get things moving again
August is Gastroparesis Awareness Month. The disorder affects stomach muscles, making it difficult for the body to process food. There can be many causes for…
40+ practitioners failed to recognize Lyme disease as root of my ailments
By Gabriela Wijegunawardena Over the past seven years I’ve seen: five primary care doctors, two neurologists, five OB-GYNs, one gastroenterologist, two urologists, one allergist, five…
Lyme patients need tests, educated doctors, and affordable treatment
Alexandra Moresco delivered the following public comments to the Tick-Borne Disease Working Group on July 8. I’m Ali Moresco, a 27 year old tick-borne illness…
Doctors must learn to recognize TBDs in minority populations
Beth Carrison delivered the following remarks to the Tick-Borne Disease Working Group on July 8. Over the past several months, increased attention is being paid…
Misdiagnosis of Lyme-caused rash can have potentially fatal consequences
Wendy Adams gave the following statement via telephone, during the July 8 meeting of the federal Tick-Borne Disease Working Group. I’m Wendy Adams of Bay…
Bias and group-think contribute to faulty treatment of Lyme disease patients
Dr. Elizabeth Maloney delivered the following remarks to the Tick-Borne Disease Working Group on July 8. Good morning. I am speaking with the support of…