Lyme Blog Posts
Why a Lyme and PANDAS mom didn’t answer your email
by Lisa Kilion A recent New York Times opinion piece, Why I Didn’t Answer Your Email, discussed reasons why a parent of neurotypical, healthy children…
My Top 10 Tips for Traveling “Smart” with Lyme disease
Many people must travel for Lyme treatment. Unable to find the help she needed in New England, Kate Bowen of Vermont decided to visit a…
From darkness to light: SIDM tells the Lorraine Johnson story
The Society to Improve Diagnosis in Medicine (SIDM) is a non-profit organization that focuses on the issue of diagnostic error. Misdiagnosis is quite common in Lyme…
History of Lyme disease in the US, by Dr. Joseph Burrascano
Dr. Joseph Burrascano, one of the world’s leading experts on the diagnosis and treatment of Lyme disease, is a founding member of the International Lyme…
Who gets to decide what constitutes scientific evidence for chronic Lyme?
Verbal Comments to the Tick-borne Diseases Working Group, December 3, 2018 by Phyllis Mervine I’m Phyllis Mervine, Founder and President of the patient advocacy nonprofit…
How I stopped chasing a “cure”–and healed from Lyme disease
by Amy B. Scher At 28 years old, and after years of suffering from medical issues that no doctor across the U.S. could unravel, I…
Lyme disease brings both unavoidable losses and unsung heroes
By Donna Falcone Picture a couple raising two sons, hundreds of miles from any other family. The husband comes home from work and finds his…
How I healed from Lyme disease and mast cell activation syndrome
By Savannah Marcum After six long years of being deeply chronically ill — suffering from Lyme disease, a handful of co-infections and mast cell activation…
Tick bite prevention is the aim of “Tickology” video series
Tick bite prevention is a big issue in Barnstable County, Massachusetts, which includes Cape Cod. The region is heavily populated with ticks and the infections…
Pilates-based tools to heal Lyme disease neck pain
by Shona Curley For 20 years, I have been teaching Pilates—a gentle method of exercise that promotes flexibility and strength. I became interested in using…
Lyme Carditis: Heart Block and Other Complications of Lyme Disease
by Adrian Baranchuk, MD, FACC ,FRCPC, FCCS, and Cynthia Yeung, BSc The incidence of Lyme disease, a tick-borne bacterial infection, is rapidly increasing in North…
Designing an environment for those “displaced” by Lyme disease
by Sylvia Janicki On a balmy early-summer day in 2014, in the bucolic Mississippi countryside, I found a tick burrowed into the side of my…