Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
TOUCHED BY LYME: Los Angeles Lymewalk included art & poetry
An artist/Lyme survivor named Marc brought his easel to the LA Lymewalk and made caricature sketches of participants. This one is of event co-leader Tracey…
TOUCHED BY LYME: (guest blog) Adapting to Lyme life requires patience, courage & a spiritual shift
Ten personal discoveries about living with chronic Lyme.
TOUCHED BY LYME: “Who am I when I can’t do what defines me?”
“Forms of Identification,” an independent short film based on the experiences of a dancer with Lyme disease, will screen at this month’s prestigious Marbella International…
TOUCHED BY LYME: How can you live with yourselves, IDSA?
Examining the huge disconnect between actual Lyme patients and those who set medical policy.
TOUCHED BY LYME: Who gets the Lyme research funding, anyway?
The 2011 CALDA Lymewalks are raising money for scientific research into Lyme and tick-borne diseases. Here's where the money goes.
TOUCHED BY LYME: IVs remain financial stumbling block for many Lyme patients
Long-term intravenous antibiotic treatment for Lyme disease is very expensive and often not covered by health insurance. One Wyoming couple found it pays to shop…
TOUCHED BY LYME: Triathlete beats back Lyme a second time; she’ll share her story at Sacramento Lymewalk
Pamela O’Kane’s remarkable Lyme story took a challenging turn after last year’s Lymewalk.
TOUCHED BY LYME: Filing for disability benefits when you have Lyme disease
Guest blogger & Lyme advocate Barbara Arnold, an attorney who practices disability law in Berkeley, CA, explains some of the factors involved when a Lyme…
TOUCHED BY LYME: Here’s my tweet to the president. What’s yours?
President Barack Obama is holding a Twitter Town Hall on Wednesday, July 6, at 2 pm eastern time.
TOUCHED BY LYME: Letters to the editor are a simple way to make a point
Writing a succinct letter to your local newspaper can be a good way to get started with Lyme activism. Here are a few other suggestions.
TOUCHED BY LYME: Answering the question “What can I do to help?”
When you and/or members of your family are chronically ill, there may be friends and family members willing to help out. But responding to and…
TOUCHED BY LYME: (guest blog) How to ask for help when you’re sick
Toni Bernard, JD, the author of the award-winning book, “How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and their Caregivers,” blogs about…