Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
TOUCHED BY LYME: Los Angeles Lymewalk is rallying point for “Team Ashlyn Levin”
Ashlyn Levin turns 20 this week, hospitalized since suffering cardiac arrest in July. It’s the latest chapter in a harrowing Lyme journey that started more…
TOUCHED BY LYME: (guest blog) Poppy seeds are much easier to spot than nymphal ticks
Phyllis Mervine, president and founder of the California Lyme Disease Association, recently felt a tickle on her neck…and found a nymphal tick. Knowing that nymphs…
TOUCHED BY LYME: Brain swelling and activism converge for San Francisco Lymewalk
Scheduled for brain surgery in November, Lyme patient Colby Lenz raises money for Lyme disease research.
TOUCHED BY LYME: After battling Lyme disease, athlete en route to Budapest for next week’s World Triathlon Championships
After almost dying from Lyme disease, Pamela O'Kane will run, swim and bike in world class competition in Budapest, Hungary.
TOUCHED BY LYME: Where money for Lyme research goes
When we started publicizing that the 2010 CALDA Lymewalks are raising money for research, many people asked us what kind of research we are funding…
TOUCHED BY LYME: Transforming CALDA’s message into a fashion statement
Fiber artist/Lyme advocate Nani Lauriano Luculescu takes a CALDA T-shirt and turns it into a stunning piece of wearable art.
TOUCHED BY LYME: Son mourns parents lost to murder-suicide and chronic Lyme
On July 8th, police in Ocala, Florida, made a shocking discovery in a travel trailer at the side of a highway–the bodies of 48-year-old George…
TOUCHED BY LYME: Tick-borne mystery in Folsom, CA. Can you say “tularemia”?
When the eight-year-old boy bent his head down, his mother noticed an odd little bump under his hair. Looking more closely, she saw it was…
TOUCHED BY LYME: Meredith raises $1500+ for Lyme research in one week…and is still going strong
Just last week, southern California Lyme patient Meredith Hiney heard about the upcoming 2010 CALDA Lymewalks, and “instantly knew” that raising money for Lyme disease…
TOUCHED BY LYME: (book review) "How to be sick"
This book is not about how to get sick or how to stay sick. It's about how to "be" when you are sick. How to…
TOUCHED BY LYME: The nuts and bolts of Lyme awareness outreach
Anne Mears, a Lyme activist from southern California, shares practical advice about setting up a Lyme display at a public event.
TOUCHED BY LYME: "Under Our Skin" producer says cronyism and conflicts of interest have stymied Lyme research
Kris Newby, senior producer of the awarding-winning Lyme disease documentary, recently addressed the Institute of Medicine's listening session for "The State of the Science" of…