Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
TOUCHED BY LYME: Lyme advocates use Facebook to make global statement
When Liz Schmitz, of the Georgia Lyme Disease Association, used Facebook to locate other Lyme advocacy groups, she not only found scores of them in…
TOUCHED BY LYME: Lyme education outreach for San Francisco cabbies
Robin Krop, a San Francisco Lyme activist, finds herself riding taxis several times a week, because she has a bad hip and bouncing buses are…
TOUCHED BY LYME: Foundation shines light on Lyme in Australia
The widow of a man who died from complications of Lyme–even though officials say the disease doesn't exist in Australia–has formed a foundation in his…
TOUCHED BY LYME: Helpful book about everything to do with PICC lines now available free on the internet
(Book review) INFUSING FOR LYMIES: A step-by-step guide with money-saving tips for buying and infusing IV medications, maintaining a PICC line, minimizing the herx reaction,…
TOUCHED BY LYME: Florida patients protest local reprinting of now-infamous Chicago Tribune article; “There’s been enough bashing of Lyme patients.”
A small band of Florida Lyme patients gathered outside the offices of the Orlando Sentinel newspaper Friday, to protest its reprinting of the Chicago Trib's…
TOUCHED BY LYME: Overcoming the "dork factor" when it comes to tick protection
Does anybody really tuck their pants in their socks?
TOUCHED BY LYME: New cookbook provides road map for Lyme Inflammation Diet
Most people dealing with Lyme eventually come face to face with the need to improve their diet. It may include going gluten-free, and/or eliminating assorted…
TOUCHED BY LYME: Only 55 Lyme cases in California? Really?
Fifty-five (55) is a remarkable number. Did you know it’s the sum of the numbers 1-10? 55 is the speed limit in some places…
TOUCHED BY LYME: Former "Sopranos" actress to speak at Los Angeles Lymewalk
Lyme disease almost wiped out Tracey Silver's acting career before it really got started. However, after three tough years of treatment, she improved enough to…
TOUCHED BY LYME: Letter to Colby’s Grandpa tells greater Lyme story
Readers of this column recently learned about Colby Lenz, a remarkable San Francisco woman experiencing both severe neurological Lyme disease and a brain condition called…
TOUCHED BY LYME: After a 62-mile bike ride for Lyme research, she’ll be at SF Lymewalk Sept. 26
For over 10 years, Carol E. was too fatigued to ride a bicycle at all. Now, after Lyme treatment, she’s cycling—and walking—to increase public awareness,…
TOUCHED BY LYME: How the IOM is connected to the 2010 CALDA Lymewalks
I leave it to my blogging colleague, the Lyme Policy Wonk, to explain the disturbing details surrounding the Institute of Medicine's upcoming Lyme workshop. But…