Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
TOUCHED BY LYME: Daughter uses Mom's Lyme testimony to educate her co-workers; You can, too.
Last week, Lyme Times assistant editor Pam Cocks testified via telephone before the Institute of Medicine. Her adult daughter, Lizzy Cocks, sent the following message…
TOUCHED BY LYME: Those controlled studies cited by the IDSA Lyme guidelines included only 221 patients
More testimony given to the Institute of Medicine about Lyme disease. Lyme Times Associate Editor Pam Cocks, the mother of two adult children with Lyme,…
TOUCHED BY LYME: "How many people will have to suffer before our society does something?"
Northern California Lyme activist Sylvianne Schwartz took part in the Institute of Medicine's June 15 "listening session" regarding Lyme disease. Here's the text of her…
TOUCHED BY LYME: Lyme patients need treatment options
The Institute of Medicine, part of the National Academy of Sciences, is in the midst of taking a look at Lyme disease. In April, the…
TOUCHED BY LYME: More comment about school disallowing Lyme teen's photo in yearbook
A Pennsylvania school district is making life even more difficult for a light-sensitive Lyme patient. Family therapist Sandy Berenbaum, who specializes in helping Lyme families…
TOUCHED BY LYME: Pennsylvania school district won’t let light-sensitive Lyme patient have specially made picture in the yearbook
Any light brighter than a cell phone's glow causes seizures for this teenager with Lyme disease. Yet she wants a graduation photo in the school…
TOUCHED BY LYME: Homeschooling with chronic illness
What to do about schooling is one of the most frustrating challenges facing families of children with Lyme disease.
TOUCHED BY LYME: Like the "Kevin Bacon Game"–making Connecticut connections for Lyme patients
Even if you don’t live in Connecticut and don’t know anybody in Connecticut, you probably know somebody who DOES know somebody in Connecticut. We need…
Nutritional strategies for healing from Lyme disease
(Book review) Improving diet may be one of the most important steps a Lyme patient can take on the road back to health.
(Guest blog) Listening to a ghost: Dr. Dave Martz talks about recovering from ALS
"Spirochick Alix" blogs about Dr. Dave Martz's presentation at CALDA's recent Lyme patient conference. Hearing how he overcame ALS touched her especially, because her father…
TOUCHED BY LYME: Research offering hope to Lyme patients
Dr. Raphael Stricker will discuss important research projects which offer hope to those with tick-borne diseases, at CALDA's upcoming Lyme patients' conference.
TOUCHED BY LYME: The spectrum of Lyme disease
Dr. Christine Green will discuss "The Many Faces of Lyme Disease" at CALDA's upcoming April 24 patients' conference GETTING HEALTHY AGAIN IN 2010.