Touched By Lyme
By Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
TOUCHED BY LYME: Letterman and Stiller, you guys are WRONG
Actor Ben Stiller discussed his knee problems and the fact that he hoped it was Lyme disease (since he seems to think that’s a minor…
TOUCHED BY LYME: Teens with Lyme–Finding the light IN the tunnel
To a teenager mired in the muck of an all-encompassing chronic illness, the promise of a better life at some distant point in the future…
TOUCHED BY LYME: Good ideas for Lyme Awareness Month
Any month can be a good time to raise awareness of Lyme disease, but May is Lyme Disease Awareness Month and offers special opportunities.
TOUCHED BY LYME: Inflammation–Taming the Fire
“Inflammation is a bonfire produced by the immune system in reaction to allergies, infections, poor diet, chemicals, heavy metals, and intestinal dysbiosis. It is…
TOUCHED BY LYME: When loved ones won't heed our hard-earned advice
What should you do when you think a loved one might have Lyme disease, but they just don't want to hear about it?
TOUCHED BY LYME: Dr. Dave Martz, who overcame his own ALS death sentence with Lyme treatment, will keynote CALDA conference April 24
As Dave Martz lay dying, an idea serpentined around his mind and would not loosen its grip: Despite the absolute diagnosis and the insistence of…
TOUCHED BY LYME: How the state of California deals with Lyme disease
I attended California’s Lyme Disease Advisory Committee (LDAC) meeting on Thursday. This is a group which advises the state’s health department on matters pertaining to…
TOUCHED BY LYME: How to get out of the hellhole. An open letter to Albany basketball coach Will Brown and his local reporter
My heart goes out to you, Coach Brown. I know how much you are suffering and I know how much your family is suffering…..But you…
TOUCHED BY LYME: (Book review) Sick & Tired–How America's Health Care System Fails Its Patients
"Jorgensen’s personal story is (sadly) not uncommon in the Lyme world. But she uses it to demonstrate a larger point. This lady went into her…
TOUCHED BY LYME:When young adults must deal with chronic illness
Author Laurie Edwards explores how to best cope with chronic illness in your Twenties and Thirties.
TOUCHED BY LYME: Quilting about life in the Lyme lane
Thirty-three year old Nani Lauriano Luculescu is a fabric artist with a vision. She wants to create a quilt—perhaps a series of quilts—to give the…
TOUCHED BY LYME: Tweeting for Lyme awareness
The California Department of Public Health recently solicited input from the Lyme Disease Advisory Committee regarding Twitter messages for Lyme disease awareness. You can contribute…