This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
When Lyme patient/advocate Liz Karkoff, of Tarrytown, NY, recently read that Lyme is one of the “Top 25” most censored news stories of 2011, she decided to do something to change that. She contacted a local reporter, who published a story about her Lyme experience and the difficulties of getting properly diagnosed. She encourages other people in small towns to do the same.
Every year, “Project Censored,” a news-monitoring research program affiliated with Sonoma State University in California, produces a Top-25 list of underreported news stories. These are also included in an annual book, “Censored,” dedicated to news stories that ought to be widely reported but are not.
“The Body Ecology Diet: Recovering Your Health and Rebuilding Your Immunity” offers a road map for getting candidiasis under control.
"Insights into Lyme Disease Treatment: 13 Lyme-Literate Health Care Practitioners Share Their Healing Strategies," by Connie Strasheim, is now available for free reading on-line.
A personal memoir of recovering from Lyme disease.
A Lyme-literate nurse practitioner writes about chronic Lyme disease.
An artist/Lyme survivor named Marc brought his easel to the LA Lymewalk and made caricature sketches of participants. This one is of event co-leader Tracey Silver. Tracey also wrote a poem for the occasion.
Ten personal discoveries about living with chronic Lyme.
“Forms of Identification,” an independent short film based on the experiences of a dancer with Lyme disease, will screen at this month’s prestigious Marbella International Film Festival in Spain.
Examining the huge disconnect between actual Lyme patients and those who set medical policy.
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