This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent’s Survival Guide.
I often tell new Lyme patients that two of the most important tools for fighting this disease are a three-ring binder and a hole punch. By this I mean it’s essential to keep good records. Get copies of everything—lab tests, medical procedure reports—and stick them in your binder, keeping this important information easily accessible. Now, somebody has come along to improve on this idea considerably.
As a kid growing up in southern California in the 80s and 90s, Bryan Bower was a bit of a daredevil: BMX biking, rollerblading, skateboarding, snowboarding—never a show-off, but always pursuing his jumps and thrills. As a college student, he discovered a new passion, rock climbing. He went everywhere with his new best friend and climbing buddy Rhyan. Joshua Tree, Tahquitz, The Needles and Malibu Canyon were southern California favorites. In his early 20s, Bryan started training to climb Yosemite's El Capitan, practicing with one of those folding ledges that you haul up and sleep on when you’re half way up the 3,000-foot granite face. All that came to a screeching halt about six years ago
Paying out-of-pocket for lab testing can take a hefty toll on your family’s pocketbook. Here’s one way to save.
Combining her love of the theater with a desire to support the Lyme community, this student actor is staging a production of "You're a Good Man, Charlie Brown" in Atherton in June.
Volunteers from East Bay Lyme Education & Patient Support (LEAPS) handed out Lyme literature and free tick repellent to recreationists at Tilden Regional Park on Sunday, May 22. Notice in the photo that the man on the right is standing with his IV pole.
Is fear of Lyme and other tick-borne illnesses keeping you from outdoor activities? Maryland Lyme advocate Lucy Barnes addresses this very real concern. While her remarks are tailored to the Eastern Shore region, they offer useful advice for the rest of the country as well.
If you just had a couple of seconds to teach somebody about Lyme disease, what would you say? A group of Lyme activists in Sturbridge, MA, distilled their message to this: “Lyme test negative? It may still be Lyme disease!” They added their web address for more information, and posted all this on a big billboard next to the Massachusetts Turnpike, near Springfield.
WDSE-WRPT, a PBS affiliate in Duluth, Minnesota, initially scheduled a May showing of the Lyme documentary. Learn why the station then changed its mind.
Guest blogger Bob Cowart, who has been diagnosed with both neurological Lyme disease and Parkinson's, articulates some everyday realities of dealing with those conditions. He dictated this article into his computer.
He called Lori his "Rambo daughter," a strong athletic soldier who liked to run marathons. But after a tick bite gave her Lyme disease none of this dad's efforts could save her life. Now, he channels his grief into educating others about how to prevent the spread of tick-borne illnesses.
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